ArticleResearch involvement and engagement2023
Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.
Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
35 citing papers in PubMed, 40 citations in OpenAlex.
- Lisdexamfetamine in the treatment of methamphetamine dependence: A randomised, placebo-controlled trial.Addiction (Abingdon, England) · 2025Trial
- 'Working Together to Meet in the Middle'. A Qualitative Descriptive Study of Power Dynamics in Lived Experience and Family Engagement in Mental Health and Substance Use Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Finding meaning in the Maze (Out): a co-produced reflexive thematic analysis of patients' reflection tasks.Journal of eating disorders · 2026Article
- Tools and Resources for Engaging People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Research: Findings From a Survey and Community Consultation Events.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Engagement of people with lived experience in the design and development of digital mental health interventions: A scoping review of engagement characteristics and impacts.Internet interventions · 2026Review
- Notes about me, without me: Research about me, without me.Research involvement and engagement · 2026Article
- From tokenism to youth leadership in child and adolescent mental health research.Public health reviews · 2026Article
- Engaging Communities to Address the Opioid Crisis in Ohio: Lessons Learned.Ohio journal of public health · 2026Article
- Building meaningful relationships through co-design: reflections from a participatory multi-year research partnership to create MedManageSCI.Frontiers in health services · 2026Article
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- The perspectives of people with lived experience, families, and researchers with the manuscript writing process in mental health and substance use research: a qualitative study.Research involvement and engagement · 2025Article
- "Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2025Article
- A systematic review of co-production approaches that involve family members, loved ones, or carers in the development of mental health or substance use resources/interventions.Research involvement and engagement · 2025Review
- Improving the reporting on health equity in observational research (STROBE-Equity): extension checklist and elaboration.BMJ (Clinical research ed.) · 2025Article
- Establishing a research advisory committee in addictions services with a focus on social needs and social isolation.Research involvement and engagement · 2025Article
- Gaps in the Engagement of People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Health Research: A Qualitative Study of Untapped Potential.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- CENTER-ing Black voices: incorporating lived experience across the research process to advance equity in drug treatment and outcomes.Harm reduction journal · 2025Article
- Co-Authoring and Reporting on Lived Experience Engagement in Mental Health and/or Substance Research: A Qualitative Study and Guidance Document.Health expectations : an international journal of public participation in health care and health policy · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is growing recognition that engaging people with lived experience (PWLE) in mental health and substance use research improves the quality of the research in terms of relevance to the population and the feasibility of the work. Engagement also provides positive opportunities for research teams and the PWLE engaged. However, there are many gaps in the research on PWLE engagement. This scoping review synthesizes the gaps in the implementation of PWLE engagement and in the research on engagement as presented by research teams engaging PWLE in their work.
methodA systematic electronic database search was conducted in 2022 for published articles on PWLE engagement in mental health and substance use research. Potential articles were screened for relevance. The search led to 49 final articles included in the review. The 49 articles were then coded using codebook thematic analysis to answer two research questions: (1) What are the research evidence gaps regarding the engagement of PWLE in mental health and substance use research?; and (2) What are the gaps in implementing PWLE engagement in mental health and substance use research? PWLE were engaged in the conduct of this review.
resultsResults showed that research evidence gaps include further work on conceptualizing engagement; developing resources, tools, and practice recommendations to support research teams; increasing diversity in evaluations of engagement; and evaluating engagement, including its impact on the research, on PWLE, and on researchers. Implementation gaps included several broader institutional gaps and gaps in the day-to-day practice of engagement.
conclusionsDespite progress in PWLE engagement in mental health and substance use research in recent years, research evidence and implementation gaps remain. Research teams are encouraged to consider these gaps and conduct research and implementation activities to address them in a rigorous manner.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.