ArticleBMJ open2023
Using experience-based co-design (EBCD) to develop high-level design principles for a visual identification system for people with dementia in acute hospital ward settings.
Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Co-Producing Training Resources to Improve Healthcare Experiences for Young Women and Reduce Gendered Health Inequalities.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- 'You've Given Me My Voice'-Enhancing Engagement in Exercise Oncology Research: A Patient and Public Involvement Approach to Co‑Designing a Pre‑Radiotherapy Exercise Programme With People Living With Lung Cancer.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Evaluating the Co-Design and Implementation of a Multicomponent Intervention to Improve Communication in Aged Care: A Nested Process Evaluation Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Communicating the risk of psychiatric in-patient or enhanced community care in dementia.BJPsych open · 2026Article
- Infusing co-design with ADAPT-ITT: adapting interventions with populations experiencing health disparities.Research involvement and engagement · 2026Article
- What Is an Identifier Good for? Issues in Using Visual Identifiers to Improve Care for People With Dementia in Hospital.Journal of advanced nursing · 2026Review
- Family interventions in dementia mental health environments (FIND ME): a mixed-methods protocol.BMJ open · 2026Article
- Child play and caregiver support to promote convalescence following severe acute malnutrition in Zimbabwe: The Tamba-SAM pilot study.Maternal & child nutrition · 2025Article
- Improving healthcare services for living kidney donors: an experience-based approach in the Netherlands.Frontiers in public health · 2025Article
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Authors and funding
4 authors.
Funding
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Abstract
objectivesWe tested a modified co-design process to develop a set of high-level design principles for visual identification systems (VIS) for hospitalised people with dementia.
designWe designed and ran remote workshops in three phases with carers of people with dementia and healthcare staff. In phase 1 we presented participants with scenarios based on findings from prior research, prompting participants to discuss their own experiences of VIS. Phase 2 used more future-focused scenarios, prompting participants to co-design improved VIS. In phase 3, a set of provisional design principles developed from our analysis of phases 1 and 2 data were discussed.
settingOnline workshops.
participantsA total of 26 carers and 9 healthcare staff took part in a pilot and three separate workshops.
resultsWe identified a set of six dementia-friendly design principles for improving the effectiveness of VIS: (1) The hospital trust provides a professionally-trained workforce and an appropriate culture of care; (2) the symbol is easily recognisable and well understood; (3) key personal information is readily available and accessible; (4) key personal information is integrated into the electronic patient record; (5) relatives and carers are involved in providing key information and monitoring care; (6) the principles need to function as a system to be successful. Participants suggested that, in addition to the use of an identifier and key personal information, professional standards training, effective information and records management and improved means to involve carers and/or families were key to the effective operation of VIS, leading us to expand a narrow understanding of a VIS.
conclusionUsing a scenario-led co-design approach can help trigger useful discussions with staff and carer groups, identify current problems with VIS and develop a set of high-level design principles for their improvement. These principles reveal day-to-day frictions that require further attention and resolution.
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