ArticleAging & mental health
Unexpected lucidity in dementia: application of qualitative methods to develop an informant-reported lucidity measure.
Article in Aging & mental health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed, 9 citations in OpenAlex.
- Lucid episodes in people with advanced dementia: characterizing caregiver reports to advance definition and measurement of episodes.The Gerontologist · 2025Article
- Article
- The e-cigarette assessment for youth-Revised (EAsY-R): Preliminary results of a pilot study of measure refinement via cognitive interviewing.Journal of research on adolescence : the official journal of the Society for Research on Adolescence · 2024Article
- The lucidity in dementia experience: perspectives from family and professional caregivers.Age and ageing · 2024Article
- Lucidity in the Deeply Forgetful: A Scoping Review.Journal of Alzheimer's disease : JAD · 2024Article
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Authors and funding
13 authors at 5 institutions in 2 countries.
Funding
Abstract
objectivesUnexpected lucidity is a phenomenon of scientific, clinical, and psychological relevance to health professionals, to those who experience it, and their relatives. This paper describes qualitative methods used to develop an informant-based measure of lucidity episodes.
methodsThe approach was refinement of the operationalization of the construct; review of seminal items, modification, and purification; and confirmation of the feasibility of reporting methodology. Modified focus groups were conducted with 20 staff and 10 family members using a web-based survey. Themes included reaction when hearing the term; words that come to mind; description of and first reaction to referenced or observed 'lucidity' events. Semi-structured cognitive interviews were conducted with 10 health professionals working with older adults with cognitive impairment. Data were extracted from Qualtrics or Microsoft 365 Word® for analysis using NVivo.
resultsConceptual issues, as well as issues regarding comprehension, interpretation, clarity, semantics, and standardization of definitions derived from an external advisory board, focus groups and cognitive interviews informed items' modification, and resulted in the final lucidity measure.
conclusionsAn obstacle to understanding the mechanisms and estimating the prevalence of lucid events among individuals with dementia and other neurological conditions is the scarcity of reliable and valid measures. The substantive and varied data gathered from multiple methods including the collaborative work of an External Advisory Board, modified focus groups with staff and family caregivers, and structured cognitive interviews with health professionals were central in creating the revised version of the lucidity measure.
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