Evidence map›Paper›PMID 37145262›Full record

ArticleCancer causes & control : CCC2023

"Did I get into the twilight zone somehow?": sexual and gender minority cancer caregiver experiences during COVID.

Shoshana Adler Jaffe, Kendal Jacobson, Amy W Farnbach Pearson, Lila A Baca, Nina Dimauro, Miria Kano

Abstract read
In one paragraph

Article in Cancer causes & control : CCC, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Shoshana Adler JaffeUniversity of New Mexico Comprehensive Cancer Center, 2325 Camino de Salud, Albuquerque, NM, 87131, USA. sadlerjaffe@salud.unm.edu.
Kendal JacobsonUniversity of New Mexico Comprehensive Cancer Center, 2325 Camino de Salud, Albuquerque, NM, 87131, USA.
Amy W Farnbach PearsonUniversity of New Mexico Comprehensive Cancer Center, 2325 Camino de Salud, Albuquerque, NM, 87131, USA.
Lila A BacaUniversity of New Mexico School of Medicine, Albuquerque, NM, USA.
Nina DimauroUniversity of New Mexico School of Medicine, Albuquerque, NM, USA.
Miria KanoUniversity of New Mexico Comprehensive Cancer Center, 2325 Camino de Salud, Albuquerque, NM, 87131, USA.

Funding

WOMEN'S CANCERS RESEARCH PROGRAMP30CA118100 · NCI · UNIVERSITY OF NEW MEXICO HEALTH SCIS CTR · PI Yolanda Sanchez · 2005 to 2026
$57.1M
NCI NIH HHS NCI P30CA118100NCI NIH HHS P30 CA118100
6 · The paper itself

Abstract

introductionThe COVID-19 pandemic created new challenges for cancer patients and caregivers. Little is known about the confluence of the pandemic and people with multiple marginalized identities, such as those in the Sexual and Gender Minority (SGM) community.

methodsWe conducted a mixed-methods pilot study using semi-structured interviews to elicit experiences of cancer among a diverse population of SGM patients and caregivers and a matched set of cisgender heterosexual (cishet) individuals. Here, we present qualitative findings focused on caregiver experiences as ascertained from the broader study.

resultsWe discovered differences between SGM and cishet caregiving experiences, with SGM caregivers reporting less comfort in the cancer center environment; dissatisfaction with patient-provider communication; feeling excluded from their loved ones' care; and increased social isolation resulting from the caregiver experience. SGM and cishet caregivers described the detrimental impact of the pandemic.

conclusionOur data suggest SGM caregivers experience additional burdens to cancer caregiving when compared to cishet peers. Although SGM and cishet caregivers reported challenges stemming from the COVID-19 pandemic, challenges appeared greater and more acute for SGM caregivers. Pandemic-related findings point to overall gaps in SGM cancer caregiver supports that may be remedied by additional research and targeted intervention development.

Indexed as

COVID-19NeoplasmsSexual and Gender MinoritiesCaregiversHumansPandemicsPilot ProjectsSexual BehaviorCaregiversCOVIDDisparitiesSexual and gender minorities

Identifiers

PMID37145262
PMCPMC10161178

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.