Evidence map›Paper›PMID 37144496›Full record

ArticleBrain injury2023

"If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention.

Tolu O Oyesanya, Stephanie O Ibemere, Callan Loflin, Victoria McReynolds, Brian Anaya, Michelle Huang, Rosa Gonzalez-Guarda, Timothy J Strauman, Janet Prvu Bettger

Open access · greenAbstract read
In one paragraph

Article in Brain injury, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
1.5field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 1 institution in 1 country.

Tolu O OyesanyaDepartment of School of Nursing, Duke University, Durham, North Carolina, USA.ORCID 0000-0001-8821-4510
Stephanie O IbemereDepartment of School of Nursing, Duke University, Durham, North Carolina, USA.
Callan LoflinDepartment of School of Nursing, Duke University, Durham, North Carolina, USA.
Victoria McReynoldsDepartment of School of Nursing, Duke University, Durham, North Carolina, USA.
Brian AnayaDepartment of School of Nursing, Duke University, Durham, North Carolina, USA.
Michelle HuangDepartment of School of Nursing, Duke University, Durham, North Carolina, USA.
Rosa Gonzalez-GuardaDepartment of School of Nursing, Duke University, Durham, North Carolina, USA.
Timothy J StraumanDepartment of Psychology and Neuroscience, Duke University, Durham, North Carolina, USA.
Janet Prvu BettgerDepartment of School of Nursing, Duke University, Durham, North Carolina, USA.
Duke University · US

Funding

Research Project 3U54MD012530 · NIMHD · DUKE UNIVERSITY · PI JOHNSON, KIMBERLY S. · 2017 to 2022
$8.8M
Roybal Center Pilot CoreP30AG064201 · NIA · DUKE UNIVERSITY · PI PRVU BETTGER, JANET ALEXANDRIA · 2019 to 2023
$3.2M
Enhancing the Transition from Hospital to Home for Patients with Traumatic Brain Injury and FamiliesR03HD101055 · NICHD · DUKE UNIVERSITY · PI OYESANYA, TOLU O. · 2020 to 2021
$327k
NIA NIH HHS P30 AG064201NICHD NIH HHS R03 HD101055NIMHD NIH HHS U54 MD012530
6 · The paper itself

Abstract

objectiveDespite research, national legislation, and clinical guidelines supporting transitional care, there is minimal benefit from existing transitional care interventions for racial/ethnic minorities with traumatic brain injury (TBI) discharged home from acute hospital care. Existing TBI transitional care interventions are not tailored to address the needs/preferences of patients from various racial/ethnic minority groups. The purpose of this study was to describe use of personalization to tailor a TBI transitional care intervention for various racial/ethnic groups.

designFollowing preliminary intervention manual development, a qualitative descriptive study was conducted using eight focus groups with 40 English-and Spanish-speaking participants (12 patients, 12 caregivers, and 16 providers).

resultsThree personalization-related themes emerged: 1) what is important to me, 2) finding someone to deliver the intervention who can adapt to my needs, and 3) respect over culture. Findings informed personalization strategies within our final manual.

conclusionsWe recommend researchers who wish to use personalization to tailor interventions to consider: 1) allowing stakeholders to dictate what is most important and 2) implementing an iterative intervention development process with input from diverse stakeholders. Findings have implications for informing the development of transitional care interventions to increase the likelihood that interventions are inclusive of needs and preferences of various races/ethnicities.

Indexed as

Brain Injuries, TraumaticTransitional CareEthnicityHumansMinority GroupsRespectbrain injuries, traumaticImplementation scienceintervention tailoringmethodstransitional care

Identifiers

PMID37144496
PMCPMC10330302
OpenAlexW4372300684

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.