ArticleJournal of autism and developmental disorders2024
Item Understanding of Common Quality of Life Measures for use with Autistic Adults.
Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- A Comprehensive Toolkit to Support Self-Report Questionnaires for Autistic Adults With Cognitive Disability.Journal of applied research in intellectual disabilities : JARID · 2026Article
- The relationship between age of autism diagnosis and life satisfaction in adulthood.Autism : the international journal of research and practice · 2026Article
- Developing a Measure of Key Adult Outcomes in Adults with Developmental Disabilities: Conceptual Model and Item Generation of the REALS (Relationships, Employment, Autonomy, and Life Satisfaction).Journal of autism and developmental disorders · 2025Article
- An Examination of Psychological Flexibility as a Mediator Between Mental Health Concerns and Satisfaction with Life Among Autistic Adults.Autism in adulthood · 2024Article
- Examining Rates of Traumatic Events and Posttraumatic Stress Disorder Symptoms Among Autistic Adults.Autism in adulthood · 2024Article
- Correlates of Quality of Life in Autistic Individuals.Research in autism spectrum disorders · 2024Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
Quality of life (QOL) and life satisfaction are important research priorities for autistic adults. As such, we saw a need to evaluate individual items of commonly used subjective QOL scales to understand how they are interpreted and perceived by autistic adults. This study used cognitive interviews and repeated sampling to evaluate the accessibility, test-retest reliability and internal consistency of several common QOL measures in a sample of young autistic adults (n = 20; aged 19-32). Cognitive interviews suggested that the Satisfaction with Life Scale was well understood and demonstrated excellent internal consistency and test-retest reliability. While the WHOQoL-BREF and WHOQoL Disability Modules had adequate reliability, cognitive interviews suggested that additional instructions and examples would further enhance their accessibility for use with autistic adults.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.