ArticleBMC psychiatry2023
Understanding the support needs of parents of children with obsessive-compulsive disorder: a qualitative descriptive study in the UK.
Article in BMC psychiatry, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 2 of them syntheses that pooled it.
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Who cites it
10 citing papers in PubMed, 2 syntheses or guidelines pooled it, 15 citations in OpenAlex.
- Experience of compassionate care in mental health and community-based services for children and young people: facilitators of, and barriers to compassionate care- a systematic review.European child & adolescent psychiatry · 2025Pooled it
- Systematic review with qualitative meta-synthesis of parents' experiences and needs in relation to having a child or young person with a mental health difficulty.BMJ mental health · 2025Pooled it
- Understanding the experience of relational accommodation for caregivers of an individual with body dysmorphic disorder: An interpretative phenomenological analysis.Psychology and psychotherapy · 2026Article
- Parents' Experiences of a Preventive Intervention for Children at Risk of Obsessive-Compulsive Disorder: A Qualitative Study.Child psychiatry and human development · 2026Article
- Child and adolescent psychiatry: challenges, solutions, opportunities, and future directions.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026Article
- OCD or Psychosis? Yes: A Case Study of a Diagnostic Conundrum and the Caregiver Role.Clinical child psychology and psychiatry · 2026Article
- Parental involvement in cognitive behavioral group treatment for adolescents with obsessive-compulsive disorder: a qualitative study.BMC psychiatry · 2026Article
- The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective.Health science reports · 2026Article
- Article
- Cognitive behavioral therapy for pediatric obsessive-compulsive disorder delivered via internet videoconferencing: a manualized sensor-assisted feasibility approach.Child and adolescent psychiatry and mental health · 2024Article
Corrections and comments
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Authors and funding
9 authors at 4 institutions in 1 country.
Funding
Abstract
introductionCaring for a child with obsessive-compulsive disorder (OCD) can be extremely difficult, yet evidence-based support strategies for parents/carers are limited. A detailed understanding of parent support needs is an important first step in intervention development and qualitative research with this focus is currently lacking. In this study, the viewpoints of parents and professionals were used to understand support needs and preferences when caring for a child with OCD. This qualitative descriptive study formed part of a wider UK-based project aimed at developing better support for parents of children with OCD.
methodIndividual semi-structured interviews (and an optional one-week journal) with a purposive sample of parents of children and young people (CYP) with OCD, aged 8-18, and focus groups (or individual interviews where preferred) with a purposive sample of professionals supporting CYP with OCD. Data comprised transcripts of audio-recorded interviews and focus groups, and text from journals. Analysis was informed by the Framework approach involving inductive and deductive coding, supported by NVivo 12.0 software. Co-production methods were adopted throughout the research process, including the involvement of a parent co-researcher and charity collaborators.
resultsInterviews were undertaken with 20 parents, of which 16 completed a journal. Twenty-five professionals took part in a focus group or interview. Five key themes relating to parent support challenges and support needs/preferences were identified (1) Coping with the impact of OCD; (2) Getting help for my child; (3) Understanding parents' role; (4) Making sense of OCD; (5) Joined-up care.
conclusionParents caring for children with OCD have clear caregiver support needs which are currently not being met. Through triangulation of parent and professional accounts, this study has identified parent support challenges (e.g., emotional impact of OCD, visibility of caring role, misunderstanding about OCD) and support needs/ preferences (e.g., headspace/respite, compassion/sensitivity, guidance on accommodation) to lay the vital foundations for the development of effective parent support interventions. There is now an urgent need to develop and test an intervention to support parents in their caregiving role, with the aim of preventing and/or reducing their levels of burden and distress and ultimately, improving their quality of life.
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