ArticlePloS one2023
Improving primary care based post-diagnostic support for people living with dementia and carers: Developing a complex intervention using the Theory of Change.
Article in PloS one, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living With Dementia (PLWD) in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for People Living With Dementia (PLWD) in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Trial
- Cost-effectiveness of a community-based dementia support model: evidence from a real-world economic evaluation.Cost effectiveness and resource allocation : C/E · 2026Article
- A theory of change for patient-initiated follow-up care in rheumatoid arthritis.BMC rheumatology · 2025Article
- Delivering systems-level change to improve post-diagnostic dementia support: Qualitative findings from the PriDem study.PloS one · 2025Article
- Transforming dementia care pathway: why shifting to a universal, comprehensive, proactive, local, and integrated model is imperative to improve outcomes.Frontiers in dementia · 2025Article
- Article
- Access to personalised dementia care planning in primary care: a mixed methods evaluation of the PriDem intervention.BMJ open · 2024Article
- General practice nurse perceptions of barriers and facilitators to implementation of best-practice dementia care recommendations-a qualitative interview study.BMC primary care · 2024Article
- A qualitative study of informal caregiver perceptions of the benefits of an early dementia diagnosis.BMC health services research · 2024Article
- Primary Care Practitioner Perspectives on the Role of Primary Care in Dementia Diagnosis and Care.JAMA network open · 2023Article
Corrections and comments
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Authors and funding
14 authors.
Funding
Abstract
backgroundThe need to improve support following a diagnosis of dementia is widely recognised, but it is unclear how this can best be achieved within UK health and social care systems. A task-shared and task-shifted approach has been recommended, but there is limited guidance on how to achieve this in practice. As part of a programme of research, we developed an intervention to enhance the role of primary care in post-diagnostic care and support for people living with dementia and carers.
methodsWe used the Theory of Change to develop a complex intervention informed by initial literature reviews and qualitative work. The intervention was developed through an iterative series of workshops, meetings and task groups with a range of stakeholders, including the multidisciplinary project team, people living with dementia and carers, service managers, frontline practitioners, and commissioners.
results142 participants contributed to intervention development through face-to-face or virtual meetings. The intervention comprises three complementary strands of work focusing on: developing systems, delivering tailored care and support, and building capacity and capability. Clinical dementia leads, based in primary care networks, will facilitate the intervention providing tailored expertise and support.
conclusionThe Theory of Change proved useful in providing structure and engaging stakeholders. The process was challenging, took longer and was less participative than intended due to restrictions caused by the COVID-19 pandemic. We will next conduct a feasibility and implementation study to explore whether the intervention can be successfully delivered within primary care. If successful, the intervention offers practical strategies for delivering a task-shared and task-shifted approach to post-diagnostic support that could be adapted for similar health and social care contexts internationally.
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Registered trials
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