Evidence map›Paper›PMID 37132046›Full record

ReviewAlcohol, clinical & experimental research2023

Lived experiences of the diagnostic assessment process for fetal alcohol spectrum disorder: A systematic review of qualitative evidence.

Nicole Hayes, Kerryn Bagley, Nicole Hewlett, Elizabeth J Elliott, Carmela F Pestell, Matthew J Gullo, Zachary Munn, Philippa Middleton, Prue Walker, Haydn Till and 10 more

Open access · hybridAbstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Alcohol, clinical & experimental research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
12.8field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 22 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors at 14 institutions in 1 country.

Nicole HayesChild Health Research Centre, The University of Queensland, South Brisbane, Queensland, Australia.ORCID https://orcid.org/0000-0003-2391-7615
Kerryn BagleyLa Trobe Rural Health School, La Trobe University, Bendigo, Victoria, Australia.
Nicole HewlettChild Health Research Centre, The University of Queensland, South Brisbane, Queensland, Australia.
Elizabeth J ElliottFaculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.
Carmela F PestellSchool of Psychological Science, University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0002-1737-7774
Matthew J GulloSchool of Applied Psychology, Griffith University, Mount Gravatt, Queensland, Australia.ORCID https://orcid.org/0000-0003-3657-5191
Zachary MunnHealth Evidence Synthesis, Recommendations and Impact, School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, South Australia, Australia.
Philippa MiddletonSouth Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
Prue WalkerVictorian Fetal Alcohol Service, Monash Children's Hospital, Clayton, Victoria, Australia.
Haydn TillChild Development Service, Gold Coast Hospital and Health Service, Southport, Queensland, Australia.ORCID https://orcid.org/0000-0002-0292-6355
Dianne C ShanleySchool of Applied Psychology, Griffith University, Gold Coast, Queensland, Australia.
Sophia L YoungChild Health Research Centre, The University of Queensland, South Brisbane, Queensland, Australia.
Nirosha BoadenSchool of Social Sciences, Faculty of Social Work, The University of New South Wales, Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0003-0563-9535
Delyse HutchinsonCentre for Social and Early Emotional Development, School of Psychology, Faculty of Health, Deakin University, Geelong, Victoria, Australia.ORCID https://orcid.org/0000-0003-3221-7143
Natalie R KippinCurtin School of Allied Health, Curtin University, Western Australia, Bentley, Australia.ORCID https://orcid.org/0000-0002-1245-3256
Amy Finlay-JonesTelethon Kids Institute, Nedlands, Western Australia, Australia.
Rowena FriendPatches Assessment Service, Darwin, Northern Territory, Australia.
Doug SheltonSchool of Medicine and Dentistry, Griffith University, Gold Coast, Queensland, Australia.
Alison CrichtonVictorian Fetal Alcohol Service, Monash Children's Hospital, Clayton, Victoria, Australia.
Natasha ReidChild Health Research Centre, The University of Queensland, South Brisbane, Queensland, Australia.ORCID https://orcid.org/0000-0001-9813-5613
Griffith University · AUThe University of Queensland · AUMonash Children’s Hospital · AUAustralian Research Council · AUCharles Darwin University · AUCurtin University · AULa Trobe University · AURoyal Children's Hospital · AUSouth Australian Health and Medical Research Institute · AUThe Kids Research Institute Australia · AUThe University of Adelaide · AUThe University of Sydney · AUThe University of Western Australia · AUUNSW Sydney · AU

Funding

Department of Health and Aged Care, Australian Government GO2647Healthway Western Australia Senior Research FellowshipMedical Research Future Fund Next Generation Fellowship 1135959Medical Research Future Fund Translating Research into Practice (TRIP) Fellowship 1167986National Health and Medical Research Council Investigator 1172870National Health and Medical Research Council Investigator APP1197488
6 · The paper itself

Abstract

Early assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood. Individuals with lived experience of FASD have expertise based on their own lives and family needs. Their insights into the assessment and diagnostic process are valuable for improving service delivery and informing the provision of meaningful, person- and family-centered care. To date, reviews have focused broadly on the experiences of living with FASD. The aim of this systematic review is to synthesize qualitative evidence on the lived experiences of the diagnostic assessment process for FASD. Six electronic databases, including PubMed, the Cochrane Library, CINAH, EMBASE, PsycINFO, and Web of Science Core Collection were searched from inception until February 2021, and updated in December 2022. A manual search of reference lists of included studies identified additional studies for inclusion. The quality of included studies was assessed using the Critical Appraisal Skills Program Checklist for Qualitative Studies. Data from included studies were synthesized using a thematic analysis approach. GRADE-CERQual was used to assess confidence in the review findings. Ten studies met the selection criteria for inclusion in the review. Thematic analysis identified 10 first-level themes relating to four over-arching topics: (1) pre-assessment concerns and challenges, (2) the diagnostic assessment process, (3) receipt of the diagnosis, and (4) post-assessment adaptations and needs. GRADE-CERQual confidence ratings for each of the review themes were moderate to high. The findings from this review have implications for referral pathways, client-centered assessment processes, and post-diagnostic recommendations and support.

Indexed as

clinical guidelinesdiagnosisfetal alcohol spectrum disorderlived experienceprenatal alcohol exposurequalitative synthesis

Identifiers

PMID37132046
PMCPMC10947124
OpenAlexW4367834873

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.