Evidence map›Paper›PMID 37130566›Full record

ArticleApplied clinical informatics2023

Sharing Clinical Notes while Protecting Adolescent Confidentiality and Maintaining Parental Insight.

Jonathan Elias, J Travis Gossey, Wenna Xi, Marianne Sharko, Laura Robbins, Susan Bostwick, Jane Chang, Virginia Lorenzi, Vasiliki Giatzikis, Jean Scofi and 2 more

Open access · hybridAbstract read
In one paragraph

Article in Applied clinical informatics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
2.6field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 8 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 5 institutions in 1 country.

Jonathan EliasDepartment of Primary Care, Weill Cornell Medicine, New York, New York, United States.
J Travis GosseyDepartment of Population Health Sciences, Weill Cornell Medicine, New York, New York, United States.
Wenna XiDepartment of Population Health Sciences, Weill Cornell Medicine, New York, New York, United States.
Marianne SharkoDepartment of Population Health Sciences, Weill Cornell Medicine, New York, New York, United States.
Laura RobbinsDepartment of Pediatrics, Morgan Stanley Children's Hospital, New York, New York, United States.
Susan BostwickDepartment of Pediatrics, Weill Cornell Medical Center, New York, New York, United States.
Jane ChangDepartment of Pediatrics, Weill Cornell Medical Center, New York, New York, United States.
Virginia LorenziNewYork-Presbyterian Hospital, New York, New York, United States.
Vasiliki GiatzikisNewYork-Presbyterian Hospital, New York, New York, United States.
Jean ScofiDepartment of Population Health Sciences, Weill Cornell Medicine, New York, New York, United States.
Richard TreppDepartment of Emergency Medicine, Columbia University Irving Medical Center, New York, New York, United States.
Rachel LewisDepartment of Pediatrics, ColumbiaDoctors, New York, New York, United States.
Cornell University · USColumbia University Irving Medical Center · USWeill Cornell Medicine · USColumbia University · USNew York Hospital Queens · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe 21st Century Cures Act mandates sharing electronic health records (EHRs) with patients. Health care providers must ensure confidential sharing of medical information with adolescents while maintaining parental insight into adolescent health. Given variability in state laws, provider opinions, EHR systems, and technological limitations, consensus on best practices to achieve adolescent clinical note sharing at scale is needed.

objectivesThis study aimed to identify an effective intervention process to implement adolescent clinical note sharing, including ensuring adolescent portal account registration accuracy, across a large multihospital health care system comprising inpatient, emergency, and ambulatory settings.

methodsA query was built to assess portal account registration accuracy. At a large multihospital health care system, 80.0% of 12- to 17-year-old patient portal accounts were classified as inaccurately registered (IR) under a parent or registration accuracy unknown (RAU). To increase accurately registered (AR) accounts, the following interventions were pursued: (1) distribution of standardized portal enrollment training; (2) patient outreach email campaign to reregister 29,599 portal accounts; (3) restriction of access to remaining IR and RAU accounts. Proxy portal configurations were also optimized. Subsequently, adolescent clinical note sharing was implemented.

resultsDistribution of standardized training materials decreased IR and increased AR accounts (

conclusionA multistep intervention process can be utilized to effectively implement adolescent clinical note sharing at a large scale across care settings. Improvements to EHR technology, portal enrollment training, adolescent/proxy portal settings, detection, and automation in reenrollment of inaccurate portal accounts are needed to maintain integrity of adolescent portal access.

Indexed as

ConfidentialityPatient PortalsAdolescentChildElectronic Health RecordsHumansInpatientsParents

Identifiers

PMID37130566
PMCPMC10371408
OpenAlexW4367693496

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.