Evidence map›Paper›PMID 37128444›Full record

ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2022

Usability preferences of people living with cystic fibrosis about a lung transplant education website.

Nick Reid, Kathleen J Ramos, Mara R Hobler, Lauren E Bartlett, Joseph B Pryor, Donna L Berry, Melissa Basile, Siddhartha G Kapnadak, Andrea L Hartzler

Abstract read
PubMed Full text at PMC
In one paragraph

Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Nick ReidDepartment of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, USA.
Kathleen J RamosDivision of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine, University of Washington, Seattle, WA, USA.
Mara R HoblerDivision of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine, University of Washington, Seattle, WA, USA.
Lauren E BartlettDivision of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine, University of Washington, Seattle, WA, USA.
Joseph B PryorDepartment of General Internal Medicine, University of Washington, Seattle, WA, USA.
Donna L BerryBiobehavioral Nursing and Health Informatics, University of Washington, Seattle, WA.
Melissa BasileNorthwell Health, Manhasset, New York, USA.
Siddhartha G KapnadakDivision of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine, University of Washington, Seattle, WA, USA.
Andrea L HartzlerDepartment of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, USA.

Funding

University of Washington Biomedical Informatics and Data Science Research Training ProgramT15LM007442 · NLM · UNIVERSITY OF WASHINGTON · PI JOHN H. GENNARI, Andrea L. Hartzler · 2002 to 2026
$19.6M
Predicting survival and planning for lung transplantation in severe cystic fibrosisK23HL138154 · NHLBI · UNIVERSITY OF WASHINGTON · PI RAMOS, KATHLEEN JESSICA · 2017 to 2021
$947k
Evaluation and Pilot Testing of a Decision Support Tool for Lung Transplant in People Living with Cystic FibrosisR03HL158728 · NHLBI · UNIVERSITY OF WASHINGTON · PI RAMOS, KATHLEEN JESSICA · 2021 to 2022
$156k
NHLBI NIH HHS K23 HL138154NHLBI NIH HHS R03 HL158728NLM NIH HHS T15 LM007442
6 · The paper itself

Abstract

People living with cystic fibrosis (CF) need educational resources about lung transplant prior to engaging in shared decision making with their medical providers. We conducted a usability study to elicit preferences of people living with CF about how didactic and experiential content could be used in an educational resource to learn about lung transplant. We created two prototypes with different design features that participants used in a scenario-based task and evaluated using the System Usability Scale. We interviewed participants and analyzed the data to understand their preferences for educational content and design. Study participants indicated that didactic resource articles were important to understanding their illness trajectory, while experiential patient stories supported fear reduction and knowledge discovery. When learning about lung transplant participants stated a preference to control the amount of information they receive and preferred a combination of didactic and experiential knowledge.

Indexed as

Cystic FibrosisLung TransplantationDecision Making, SharedEducational StatusHumansLearning

Identifiers

PMID37128444
PMCPMC10148363

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.