Evidence map›Paper›PMID 37127564›Full record

ArticleBMC nephrology2023

Barriers and facilitators to the transplant process among patients living with polycystic kidney disease: a qualitative Approach.

Juliana Smith, Orlando O Harris, Deborah Adey, Meyeon Park

Open access · goldAbstract read
In one paragraph

Article in BMC nephrology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.3field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 4 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

Juliana SmithUniversity of California, San Francisco School of Medicine, 505 Parnassus Ave, San Francisco, CA, 94143, United States.
Orlando O HarrisDepartment of Community Health Systems, School of Nursing, University of California, San Francisco 2 Koret Way, N 531E, Box 0608, San Francisco, CA, 94143, United States.
Deborah AdeyDepartment of Medicine, Division of Nephrology, University of California, San Francisco, 400 Parnassus, ACC Box 701 KTU, Box 0532, San Francisco, CA, 94143, United States.
Meyeon ParkDepartment of Medicine, Division of Nephrology, University of California, San Francisco, 400 Parnassus, ACC Box 701 KTU, Box 0532, San Francisco, CA, 94143, United States. Meyeon.park@ucsf.edu.
University of California, San Francisco · USUnity Health System · US

Funding

Jamaica CARES Project: Enhancing HIV Care Continuity Among Priority Populations in JamaicaK23MH130250 · NIMH · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Orlando Omar Harris · 2022 to 2026
$998k
NIMH NIH HHS K23 MH130250
6 · The paper itself

Abstract

backgroundKidney transplant is the gold standard for renal replacement therapy in patients with autosomal dominant polycystic kidney disease (ADPKD), which is the fourth leading cause of kidney failure. Despite the medical and economic benefits of preemptive kidney transplant over dialysis before transplant, only 9-21% of qualifying patients receive preemptive transplants. Given the low rates of preemptive transplant, the aim of this study was to determine perceived facilitators and barriers to preemptive transplant among ADPKD patients using a qualitative approach.

methodsData were collected between July 2021 and January 2022 from virtual individual semi-structured interviews of 16 adult participants with ADPKD. Qualitative analysis of the recorded interviews was conducted to generate themes.

resultsOur findings revealed two themes specific for facilitators to preemptive transplant (social support and patient agency) and three themes specific to barriers for preemptive transplant (inadequate social support, gaps in knowledge, and institutional and systemic policies). The results also include various subthemes and the application of these themes to the social ecological model.

conclusionsThese findings suggest that increasing social support and patient agency, such as through patient navigator programs and encouraging effective communication between health care providers and patients, can facilitate the transplant process. Increasing dissemination of transplant knowledge from institutions and systems to patients through paired kidney exchange education and live donor outreach can also increase timely access to preemptive kidney transplants for patients with ADPKD. Our findings are limited by our single site study in the US, which may not apply to individuals experiencing different social, cultural, and health access conditions.

Indexed as

Kidney Failure, ChronicKidney TransplantationPolycystic Kidney, Autosomal DominantPolycystic Kidney DiseasesAdultHumansRenal DialysisRenal Replacement TherapyADPKDKidney transplantPKDPolycystic kidney diseasePreemptive transplantTransplant patient perspective

Identifiers

PMID37127564
PMCPMC10150665
OpenAlexW4367624494

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.