ArticleJournal of clinical and translational science2023
Challenges and recommendations to improve institutional review boards' review of community-engaged research proposals: A scoping review.
Article in Journal of clinical and translational science, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed.
- The Impact of "Ethics Creep" on Research, Teaching and Learning in the Social Sciences and Humanities: A Survey of Canadian Researchers' Experience with Research Ethics Boards.Canadian review of sociology = Revue canadienne de sociologie · 2026Article
- Setting the rules of engagement: a qualitative study of challenges and enablers of engaged research in a South African emergency care system.Research involvement and engagement · 2026Article
- Religion and Maternal Healthcare-Seeking Behavior in Muslim and Hindu Communities in Rural Bangladesh: A Qualitative Comparative Study.Journal of religion and health · 2026Article
- Infusing co-design with ADAPT-ITT: adapting interventions with populations experiencing health disparities.Research involvement and engagement · 2026Article
- Creating a Youth Sex Trafficking Prevention Curriculum Using CBPAR: Challenges, Successes, and Lessons Learned.Journal of child sexual abuse · 2026Article
- Evaluation of the National Dental PBRN central IRB since its inception in 2014 until 2025.Journal of clinical and translational science · 2026Article
- Implementing Social Media Strategies in Community-Partnered HIV Research: Practical Considerations From 3 Ongoing Studies.JMIR public health and surveillance · 2025Article
- Community-Engaged Research in Early Home Visiting: A Scoping Review of Peer-Reviewed Literature.Prevention science : the official journal of the Society for Prevention Research · 2025Article
- Equitable research is better research: let's invest in doing it right.Pediatric research · 2025Article
- The importance of rigor in pharmacy research: Challenges and solutions.Research in social & administrative pharmacy : RSAP · 2025Article
- A Qualitative Study of the Ethics of Community Scientists' Role in Environmental Health Research from the Perspective of Community Scientists and Institutional Review Board Staff.Environmental health perspectives · 2025Article
- Engaging stakeholders to strengthen support for community-engaged research at Stanford School of Medicine: An institutional assessment and action planning approach.Journal of clinical and translational science · 2025Article
- Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic.Journal of clinical and translational science · 2025Article
- Relationships, Trust and Accountability, and Critical Reflexivity: Developing Quality Data with the "Hard to Reach".Public opinion quarterly · 2025Article
- Behind the scenes of research ethics committee oversight: a qualitative research study with committee chairs in the Middle East and North Africa region.BMC medical ethics · 2024Article
- The Need for IRB Leadership to Address the New Ethical Challenges of Research with Highly Portable Neuroimaging Technologies.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2024Article
- The importance of patients in conflict of interest declarations.Frontiers in medicine · 2024Article
- Coping Strategies as a Moderator for the Association between Intimate Partner Violence and Depression and Anxiety Symptoms among Transgender Women.International journal of environmental research and public health · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
Academic and community investigators conducting community-engaged research (CEnR) are often met with challenges when seeking Institutional Review Board (IRB) approval. This scoping review aims to identify challenges and recommendations for CEnR investigators and community partners working with IRBs. Peer-reviewed articles that reported on CEnR, specified study-related challenges, and lessons learned for working with IRBs and conducted in the United States were included for review. Fifteen studies met the criteria and were extracted for this review. Four challenges identified (1) Community partners not being recognized as research partners (2) Cultural competence, language of consent forms, and literacy level of partners; (3) IRBs apply formulaic approaches to CEnR; & (4) Extensive delays in IRB preparation and approval potentially stifle the relationships with community partners. Recommendations included (1) Training IRBs to understand CEnR principles to streamline and increase the flexibility of the IRB review process; (2) Identifying influential community stakeholders who can provide support for the study; and (3) Disseminating human subjects research training that is accessible to all community investigator to satisfy IRB concerns. Findings from our study suggest that IRBs can benefit from more training in CEnR requirements and methodologies.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.