Evidence map›Paper›PMID 37114726›Full record

ArticlePrimary health care research & development2023

Clinicians' experiences with cancer patients living longer with incurable cancer: a focus group study in the Netherlands.

Hilde M Buiting, Femke Botman, Lilly-Ann van der Velden, Linda Brom, Florien van Heest, Eva E Bolt, Pieter de Mol, Ton Bakker

Open access · goldAbstract read
In one paragraph

Article in Primary health care research & development, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
1.2field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 4 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 6 institutions in 1 country.

Hilde M BuitingNetherlands Cancer Institute, Antoni van Leeuwenhoek, Department of Medical Oncology, Head & Neck Surgery, and Thoracic Oncology, Amsterdam, the Netherlands.ORCID 0000-0003-0701-9874
Femke BotmanAmsterdam UMC, VUmc, Department of Medical Oncology, Amsterdam, the Netherlands.
Lilly-Ann van der VeldenNetherlands Cancer Institute, Antoni van Leeuwenhoek, Department of Head and Neck Oncology, Amsterdam, the Netherlands.
Linda BromNetherlands Comprehensive Cancer Organisation, Department of Research, Utrecht, the Netherlands.
Florien van HeestGP Practice Schoonoord, Schoonoord, the Netherlands.ORCID 0000-0003-1344-5482
Eva E BoltAmsterdam UMC, VUmc, Department of Public and Occupational Health, Amsterdam, the Netherlands.ORCID 0000-0002-7717-2930
Pieter de MolHospital Gelderse Vallei, Department of Medical Oncology, Ede, the Netherlands.
Ton BakkerScience in Balance Foundation, Rotterdam, the Netherlands.
The Netherlands Cancer Institute · NLAmsterdam UMC Location Vrije Universiteit Amsterdam · NLAmsterdam University Medical Centers · NLNetherlands Comprehensive Cancer Organisation · NLRotterdam University of Applied Sciences · NLZiekenhuis Gelderse Vallei · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimTo explore (1) experiences of primary care physicians (PCPs) and oncological medical specialists about providing care to patients living longer with incurable cancer, and (2) their preferences concerning different care approaches (palliative support, psychological/survivorship care support).

backgroundAt present, oncological medical specialists as well as PCPs are exploring how to improve and better tailor care to patients living longer with incurable cancer. Our previous study at the in-patient oncology unit showed that patients living longer with incurable cancer experience problems in how to deal with a prognosis that is insecure and fluctuating. To date, it could be argued that treating these patients can be done with a 'palliative care' or a 'survivorship/psychosocial care' approach. It is unknown what happens in actual medical practice.

methodsWe performed multidisciplinary group meetings: 6 focus groups (3 homogenous groups with PCPs ( FINDINGS AND

conclusionsIn the near future, PCPs will have an increasing number of patients living longer with incurable cancer. However, in a single PCP practice, the experience with incurable cancer patients remains low, partly because patients often prefer to stay in contact with their medical specialist. PCPs as well as medical specialists show concerns in how they can address this disease phase with the right care approach, including the appropriate label (e.g. palliative, chronic, etc.). They all preferred to be in contact early in the disease process, to be able to discuss and take care for the patients' physical and psychological well-being. Medical specialists can have an important role by timely referring their patients to their PCPs. Moreover, the disease label 'chronic' can possibly assist patients to live their life in the best possible way.

Indexed as

NeoplasmsPhysicians, Primary CareFocus GroupsHumansMedical OncologyNetherlandsPalliative Carecancerchronic diseasedecision-makingdoctor–patient communication

Identifiers

PMID37114726
PMCPMC10156464
OpenAlexW4367320821

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.