ArticlePalliative care and social practice2023
How does community engagement evolve in different compassionate community contexts? A longitudinal comparative ethnographic research protocol.
Article in Palliative care and social practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- Taboo, safe spaces, and death sociability: A comparative ethnography of two compassionate communities.Palliative care and social practice · 2026Article
- Community engagement in public health palliative care: A comparative ethnographic study of two culturally distinct compassionate communities in Canada.Palliative care and social practice · 2025Article
- Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory.BMC palliative care · 2024Article
- Developing Compassionate Community: Insights from the International Standards for Community Development.Health open research · 2024Article
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Authors and funding
11 authors.
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Abstract
Background: Compassionate communities build on health promoting palliative care that aims to address gaps in access, quality, and continuity of care in the context of dying, death, loss, and grief. While community engagement is a core principle of public health palliative care, it has received little attention in empirical studies of compassionate communities. Objectives: The objectives of this research are to describe the process of community engagement initiated by two compassionate communities projects, to understand the influence of contextual factors on community engagement over time, and assess the contribution of community engagement on proximal outcomes and the potential for sustaining compassionate communities. Research Approach and Design: We use a community-based participatory action-research approach to study two compassionate communities initiatives in Montreal (Canada). We develop a longitudinal comparative ethnographic design to study how community engagement evolves in different compassionate communities contexts. Methods and Analysis: Data collection includes focus groups, review of key documents and project logbooks, participant observation, semi-structured interviews with key informants, and questionnaires with a focus on community engagement. Grounded in the ecology of engagement theory and the Canadian compassionate communities evaluation framework, data analysis is structured around longitudinal and comparative axes to assess the evolution of community engagement over time and to explore the contextual factors influencing the process of community engagement and its impacts according to local context. Ethic: This research is approved by the research ethics board of the Centre hospitalier de l'Université de Montréal (approval certificate #18.353). Discussion: Understanding the process of community engagement in two compassionate communities will contribute to a deeper understanding of the relationships between local context, community engagement processes, and their effect on compassionate communities outcomes.
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