Evidence map›Paper›PMID 37101266›Full record

ArticleBMC health services research2023

Empowered patients and informal care-givers as partners?-a survey study of healthcare professionals' perceptions.

Therese Scott Duncan, Sara Riggare, Ami Bylund, Maria Hägglund, Terese Stenfors, Lena Sharp, Sabine Koch

Open access · goldAbstract read
In one paragraph

Article in BMC health services research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
4.8field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 11 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 2 countries.

Therese Scott DuncanKarolinska Institutet, LIME, Stockholm, S-171 77, Sweden. therese.scott.duncan@ki.se.ORCID http://orcid.org/0000-0003-4031-1965
Sara RiggareDepartment of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID http://orcid.org/0000-0002-2256-7310
Ami BylundKarolinska Institutet, LIME, Stockholm, S-171 77, Sweden.ORCID http://orcid.org/0000-0001-7118-4933
Maria HägglundKarolinska Institutet, LIME, Stockholm, S-171 77, Sweden.ORCID http://orcid.org/0000-0002-6839-3651
Terese StenforsKarolinska Institutet, LIME, Stockholm, S-171 77, Sweden.ORCID http://orcid.org/0000-0002-0854-8631
Lena SharpRegional Cancer Centre Stockholm - Gotland, Stockholm Region, Sweden.ORCID http://orcid.org/0000-0002-0818-6992
Sabine KochKarolinska Institutet, LIME, Stockholm, S-171 77, Sweden.ORCID http://orcid.org/0000-0001-7144-8740
Karolinska Institutet · SEUppsala University · SERegion Västra Götaland · SESophiahemmet University College · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMore knowledge is needed regarding the perceptions of healthcare professionals when encountering empowered patients and informal caregivers in clinical settings. This study aimed to investigate healthcare professionals' attitudes towards and experiences of working with empowered patients and informal caregivers, and perception of workplace support in these situations.

methodsA multi-centre web survey was conducted using a non-probability sampling of both primary and specialized healthcare professionals across Sweden. A total of 279 healthcare professionals completed the survey. Data was analysed using descriptive statistics and Thematic analysis.

resultsMost respondents perceived empowered patients and informal caregivers as positive and had to some extent experience of learning new knowledge and skills from them. However, few respondents stated that these experiences were regularly followed-up at their workplace. Potentially negative consequences such as increased inequality and additional workload were, however, mentioned. Patients' engagement in the development of clinical workplaces was seen as positive by the respondents, but few had own experience of such engagement and considered it difficult to be achieved .

conclusionOverall positive attitudes of healthcare professionals are a fundamental prerequisite to the transition of the healthcare system recognizing empowered patients and informal caregivers as partners.

Indexed as

CaregiversHealth PersonnelAttitude of Health PersonnelHumansPatient CareSurveys and QuestionnairesHealthcare professionals’ perceptionsPatient-centered carePatient empowermentPrimary Health CareSecondary careSpecialized HealthcareSweden

Identifiers

PMID37101266
PMCPMC10131407
OpenAlexW4367052098

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.