ArticleSocial studies of science2023
Data as symptom: Doctors' responses to patient-provided data in general practice.
Article in Social studies of science, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Use of Patient-Generated Health Data From Consumer-Grade Devices by Health Care Professionals in the Clinic: Systematic Review.Journal of medical Internet research · 2024Pooled it
- Overdiagnosis in atrial fibrillation screening with wearables.Scandinavian journal of primary health care · 2026Article
- Integrating Consumer-Grade Wearable Devices and Patient-Generated Health Data into Clinical Care: Perspectives from Healthcare Professionals at a Learning Health System.Journal of general internal medicine · 2026Article
- Precision prevention and the temporal disruption of evidence: the case of heart rate notifications from wearables.Medicine, health care, and philosophy · 2026Article
- Self-tracking in endometriosis: Evolving expectations around a gynecological app developed by a Finnish patient organization.Social studies of science · 2025Article
- Attitudes of healthcare professionals and researchers toward wearable and app derived patient generated health data.NPJ digital medicine · 2025Article
- Patient-Generated Data as Interventions in Doctor-Patient Relationships? Negotiating (Un)Invited Participation in Medical Consultations.Sociology of health & illness · 2025Article
- Clinical decision making and risk appraisal using electronic risk assessment tools for cancer diagnosis: a qualitative study of GP experiences.BJGP open · 2025Article
- Article
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
People are increasingly able to generate their own health data through new technologies such as wearables and online symptom checkers. However, generating data is one thing, interpreting them another. General practitioners (GPs) are likely to be the first to help with interpretations. Policymakers in the European Union are investing heavily in infrastructures to provide GPs access to patient measurements. But there may be a disconnect between policy ambitions and the everyday practices of GPs. To investigate this, we conducted semi-structured interviews with 23 Danish GPs. According to the GPs, patients relatively rarely bring data to them. GPs mostly remember three types of patient-generated data that patients bring to them for interpretation: heart and sleep measurements from wearables and results from online symptom checkers. However, they also spoke extensively about data work with patient queries concerning measurements from the GPs' own online Patient Reported Outcome system and online access to laboratory results. We juxtapose GP reflections on these five data types and between policy ambitions and everyday practices. These data require substantial recontextualization work before the GPs ascribe them evidential value and act on them. Even when they perceived as actionable, patient-provided data are not approached as measurements, as suggested by policy frameworks. Rather, GPs treat them as analogous to symptoms-that is to say, GPs treat patient-provided data as subjective evidence rather than authoritative measures. Drawing on Science and Technology Studies (STS) literature,we suggest that GPs must be part of the conversation with policy makers and digital entrepreneurs around when and how to integrate patient-generated data into healthcare infrastructures.
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