ReviewResearch involvement and engagement2023
Understanding the identity of lived experience researchers and providers: a conceptual framework and systematic narrative review.
Review in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
33 citing papers in PubMed, 70 citations in OpenAlex.
- Psychosocial interventions for military personnel with PTSD: protocol of a systematic review and network meta-analysis.BMJ open · 2026Article
- Integrating a Lived Experience Position Into an Adult Survivors Program in Health: A Co-Reflection of Lived Experience, Clinical and Academic Perspectives.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Views on mental health research in the context of schizophrenia: perspectives of peer support workers and researchers with lived experience - a qualitative study.Research involvement and engagement · 2026Article
- How, why, for whom, and in what contexts organisational and team dynamics shape, and are shaped by, service user researchers in higher education mental health research centres: a realist review protocol.Research involvement and engagement · 2026Review
- Lived experience leadership in cancer research: a scoping review of conceptual definitions, roles, responsibilities, and impacts.Journal of cancer survivorship : research and practice · 2026Review
- From the ICU Bedside: Applying the Transnational Clinical Academic Doctorate Lens to a Clinically Embedded PhD Journey.Journal of advanced nursing · 2026Review
- Partnering with people with lived experience in eating disorder research: conceptual and practical considerations.Journal of eating disorders · 2026Article
- 'I Battle With This Gambling Addiction Every Day'. Learning From Lived Experiences of Recovery to Guide Gambling Harm Prevention Strategies.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Five meaningful roles of engagement: Framework for Lived Experience Roles in Mental Health Research (FLER-R).PLOS mental health · 2026Article
- Best practices for supporting researchers' mental health in emotionally demanding research across academic and non-academic contexts.International journal of qualitative studies on health and well-being · 2025Article
- Decentralized Biobanking Pathway to Precision Medicine: Futures Study.Journal of medical Internet research · 2025Article
- The Social Drama of Mental Health Professionals who are also Former Mental Health Service Users.Culture, medicine and psychiatry · 2025Article
- Broad considerations for improving eating disorder care: a lived experience and quality improvement perspective.Journal of eating disorders · 2025Article
- Evaluation of a 'Research Methods' Training Course for Novice Lived Experience Researchers.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Barriers and facilitators to treatment in severe and enduring eating disorders: a mixed-methods study of access, engagement, and lived experience.Journal of eating disorders · 2025Article
- 'Lemons to lemonade': Identity integration in researchers with lived experience of psychosis.Psychology and psychotherapy · 2025Article
- Exploring the social experiences, stigma and discrimination, faced by women with gestational diabetes: A collaborative qualitative study and item-pool development.Diabetic medicine : a journal of the British Diabetic Association · 2025Article
- Measuring impacts of patient and public involvement and engagement (PPIE): a narrative review synthesis of review evidence.Research involvement and engagement · 2025Review
- Lived experience is essential for innovation in biomedical research.Nature reviews. Nephrology · 2025Article
- Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIdentity is how we understand ourselves and others through the roles or social groups we occupy. This review focuses on lived experience researchers and providers and the impact of these roles on identity. Lived experience researchers and providers use their lived experience of mental or physical disability either as experts by experience, researchers, peer workers, or mental health professionals with lived experience. They must navigate both professional and personal aspects to their roles which can be complex. Performing roles simultaneously embodying professional and lived experiences contribute towards a lack of clarity to identity. This is not adequately explained by the theoretical evidence base for identity. MAIN BODY: This systematic review and narrative synthesis aimed to provide a conceptual framework to understand how identity of lived experience researchers and providers is conceptualised. A search strategy was entered into EBSCO to access Academic search complete, CINAHL, MEDLINE, PsycINFO, Psych Articles, and Connected papers. Out of the 2049 yielded papers, thirteen qualitative papers were eligible and synthesised, resulting in a conceptual framework. Five themes explained identity positions: Professional, Service user, Integrated, Unintegrated and Liminal. The EMERGES framework, an original conception of this review, found themes of: Enablers and Empowerment, Motivation, Empathy of the self and others, Recovery model and medical model, Growth and transformation, Exclusion and Survivor roots contributed to lived experience researcher and provider identities.
conclusionsThe EMERGES framework offers a novel way to understand the identities of lived experience researchers and providers, helping support effective team working in mental health, education, and research settings.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.