Evidence map›Paper›PMID 37081828›Full record

ArticleJournal of the American Geriatrics Society2023

Rural disparities in use of family and formal caregiving for older adults with disabilities.

Katherine E M Miller, Katherine A Ornstein, Norma B Coe

Open access · greenAbstract read
In one paragraph

Article in Journal of the American Geriatrics Society, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed
13.3field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 23 citations in OpenAlex.

  1. Rural and Urban Differences in the Trends in Supply of Home Care Workers From 2015 to 2024.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
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  9. Urbanicity and Disparities in the Functional and Physical Abilities of Older Adults Using the Health and Retirement Study: A Cross-Sectional Study.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
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  12. Models of Care for Older People: A Scoping Review.Journal of the American Geriatrics Society · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 3 institutions in 2 countries.

Katherine E M MillerDivision of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.ORCID 0000-0002-6726-2369
Katherine A OrnsteinCenter for Equity in Aging, Johns Hopkins University School of Nursing, Baltimore, Maryland, USA.ORCID 0000-0001-6270-4423
Norma B CoeDivision of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.ORCID 0000-0003-1228-0938
Durham VA Health Care System · USJohns Hopkins University · USUniversity of Pennsylvania · US

Funding

Effects of Informal Care for persons with Alzheimer's Disease and related dementiasR01AG057501 · NIA · UNIVERSITY OF PENNSYLVANIA · PI COE, NORMA B · 2017 to 2020
$2.7M
NIA NIH HHS R01 AG057501
6 · The paper itself

Abstract

backgroundAs federal and state policies rebalance long-term care from institutional settings to home- and community-based settings, reliance on formal (paid) and family (unpaid) caregivers for support at home nationally has increased in recent years. Yet, it is unknown if use of formal and family care varies by rurality.

methodsUsing the Health and Retirement Study, we describe patterns in receipt of combinations of formal and family home care and self-reported expectation of nursing home use by rurality among community-dwelling adults aged 65+ with functional limitations from 2004 to 2016.

resultsOlder adults residing in rural areas are more likely to receive any family care than those in urban areas. From 2004 to 2016, a higher proportion of older adults in rural areas receive care from family caregivers exclusively while a lower proportion receive care from formal caregivers exclusively. When examining older adults in urban areas, we find the opposite - a higher proportion of urban adults rely exclusively on formal care and a lower proportion rely exclusively on family care in 2016 compared to 2004.

conclusionWe find that national estimates of sources of caregiving and their changes over time mask significant heterogeneity in uptake by rurality. Understanding how older adults in rural areas are, or are not, receiving home-based care compared to their urban peers and how these patterns are changing over time is the first step to informing supports for family and formal caregivers.

Indexed as

Home Care ServicesPersons with DisabilitiesAgedCaregiversFamilyHumansIndependent LivingSkilled Nursing Facilitiescaregivingfamily caregiverhome- and community-based serviceshome care

Identifiers

PMID37081828
PMCPMC10524125
OpenAlexW4366602958

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.