Evidence map›Paper›PMID 37072355›Full record

ArticleBMJ open2023

Views of leaders in under-represented and equity-denied communities on organ and tissue donation in Nova Scotia, Canada, in light of the Human Organ and Tissue Donation Act: a qualitative descriptive study.

Robin Urquhart, Cynthia Kendell, Matthew Weiss, Nelofar Kureshi, Jade Dirk, Wendy Cordoba, Stephen Beed

Abstract read
In one paragraph

Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Robin UrquhartDepartment of Community Health and Epidemiology, Dalhousie University, Halifax, Nova Scotia, Canada robin.urquhart@nshealth.ca.ORCID 0000-0001-8864-5716
Cynthia KendellDepartment of Surgery, Nova Scotia Health Authority, Halifax, Nova Scotia, Canada.
Matthew WeissDepartment of Pediatrics, Centre Mère-Enfant Soleil du CHU de Québec, Quebec, Quebec, Canada.ORCID 0000-0002-1052-0128
Nelofar KureshiDepartment of Surgery, Division of Neurosurgery, Dalhousie University, Halifax, Nova Scotia, Canada.
Jade DirkResearch, Discovery, and Innovation, Nova Scotia Health, Halifax, Nova Scotia, Canada.
Wendy CordobaFaculty of Science, Mount Saint Vincent University, Halifax, Nova Scotia, Canada.
Stephen BeedDepartment of Critical Care, Dalhousie University Faculty of Medicine, Halifax, Nova Scotia, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo explore the views of underserved and equity-denied communities in Nova Scotia, Canada, regarding organ and tissue donation and deemed consent legislation.

designA qualitative descriptive study was undertaken, employing both interviews and focus groups.

settingThe province of Nova Scotia, Canada-the first jurisdiction in North America to implement deemed consent legislation for organ and tissue donation.

participantsLeaders of African Nova Scotian, Lesbian, Gay, Bisexual, Trans, Queer, Two Spirit (LGBTQ2S+) and Faith-based communities (Islam and Judaism) were invited to participate (n=11). Leaders were defined as persons responsible for community organisations or in other leadership roles, and were purposively recruited by the research team.

resultsThrough thematic analysis, four main themes were identified: (1) alignment with personal values as well as religious beliefs and perspectives; (2) trust and relationships, which need to be acknowledged and addressed in the context of deemed consent legislation; (3) cultural competence, which is essential to the roll-out of the new legislation and (4) communication and information to combat misconceptions and misinformation, facilitate informed decision-making, and mitigate conflict within families.

conclusionsLeaders of African Nova Scotian, LGBTQ2S+ and Faith-based communities in Nova Scotia are highly supportive of deemed consent legislation. Despite this, many issues exemplify the need for cultural competence at all levels. These findings should inform ongoing implementation of the legislation and other jurisdictions considering a deemed consent approach to organ and tissue donation.

Indexed as

Tissue and Organ ProcurementFemaleFocus GroupsHumansNorth AmericaNova ScotiaQualitative ResearchHealth policyINTENSIVE & CRITICAL CAREQUALITATIVE RESEARCH

Identifiers

PMID37072355
PMCPMC10124243

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.