Evidence map›Paper›PMID 37067882›Full record

ArticleJMIR mental health2023

Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice.

Yasuhiro Kotera, Stefan Rennick-Egglestone, Fiona Ng, Joy Llewellyn-Beardsley, Yasmin Ali, Chris Newby, Caroline Fox, Emily Slade, Simon Bradstreet, Julian Harrison and 3 more

Abstract read
In one paragraph

Article in JMIR mental health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Yasuhiro KoteraSchool of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0002-0251-0085
Stefan Rennick-EgglestoneSchool of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0003-4187-011X
Fiona NgSchool of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0002-8656-8830
Joy Llewellyn-BeardsleySchool of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0003-0525-6358
Yasmin AliSchool of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0002-0228-6562
Chris NewbySchool of Medicine, Queen's Medical Centre, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0002-2936-8592
Caroline FoxSchool of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0003-3399-4729
Emily SladeDepartment of Computer Science, University of Oxford, Oxford, United Kingdom.ORCID https://orcid.org/0000-0001-6794-5461
Simon BradstreetSchool of Health & Wellbeing, University of Glasgow, Glasgow, United Kingdom.ORCID https://orcid.org/0000-0002-0339-1882
Julian HarrisonNarrative Experiences Online Lived Experience Advisory Panel, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0003-4868-2605
Donna FranklinNarrative Experiences Online Lived Experience Advisory Panel, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0002-9755-870X
Olamide TodowedeSchool of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0002-5785-1426
Mike SladeSchool of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID https://orcid.org/0000-0001-7020-3434

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, including struggles and successes over time. Helpful impacts of recorded mental health recovery narratives include connectedness with the narrative and validation of experiences. Possible harms include feeling disconnected and excluded from others. Diverse narrative collections from many types of narrators and describing multiple ways to recover are important to maximize the opportunity for service users to benefit through connection and to minimize the likelihood of harm. Mental health clinicians need to know whether narrative collections are sufficiently diverse to recommend to service users. However, no method exists for assessing the diversity and inclusivity of existing or new narrative collections. We argue that assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. This is important, but methodologically and ethically complex. In this viewpoint, we propose and evaluate one diversity and two inclusivity assessment methods. The diversity assessment method involves use of the Simpson Diversity Index. The two inclusivity assessment methods are based on comparator demographic rates and arbitrary thresholds, respectively. These methods were applied to four narrative collections as a case study. Refinements are needed regarding a narrative assessment tool in terms of its practicality and cultural adaptation.

Indexed as

clinical practicecollective actioncurationdemographicdigital healthdiversityinclusivitymental healthnarrative researchrecovery narrativetelemedicineweb-based mental health interventions

Identifiers

PMID37067882
PMCPMC10152384

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.