Evidence map›Paper›PMID 37063478›Full record

ArticleGlobal bioethics = Problemi di bioetica2023

Participant views on practical considerations for feedback of individual genetic research results: a case study from Botswana.

Dimpho Ralefala, Mary Kasule, Olivia P Matshabane, Ambroise Wonkam, Mogomotsi Matshaba, Jantina de Vries

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Global bioethics = Problemi di bioetica, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Dimpho RalefalaFaculty of Health Sciences, Department of Medicine, University of Cape Town, Cape Town, South Africa.ORCID https://orcid.org/0000-0001-9074-0405
Mary KasuleBotswana-Baylor Children's Clinical Centre of Excellence, Gaborone, Botswana.ORCID https://orcid.org/0000-0002-9054-1518
Olivia P MatshabaneFaculty of Health Sciences, Department of Medicine, University of Cape Town, Cape Town, South Africa.ORCID https://orcid.org/0000-0002-5977-8904
Ambroise WonkamFaculty of Health Sciences, Department of Medicine, University of Cape Town, Cape Town, South Africa.ORCID https://orcid.org/0000-0003-1420-9051
Mogomotsi MatshabaBotswana-Baylor Children's Clinical Centre of Excellence, Gaborone, Botswana.ORCID https://orcid.org/0000-0002-6441-1218
Jantina de VriesFaculty of Health Sciences, Department of Medicine, University of Cape Town, Cape Town, South Africa.ORCID https://orcid.org/0000-0001-7192-2633

Funding

Return of a Fragile X Syndrome genetic result: exploring the feedback of individual genetic findings and their relation to traditional knowledge in a village in Cameroon.U54HG009790 · NHGRI · UNIVERSITY OF CAPE TOWN · PI DE VRIES, JANTINA, WONKAM, AMBROISE · 2017 to 2021
$2.5M
Public Understanding of Big data in Genomics Medicine in Africa (PUBGEM-Africa)U01MH127692 · NIMH · UNIVERSITY OF CAPE TOWN · PI MUNUNG, NCHANGWI SYNTIA, WONKAM, AMBROISE · 2021 to 2025
$1.9M
NHGRI NIH HHS U54 HG009790NIMH NIH HHS U01 MH127692
6 · The paper itself

Abstract

Key to discussions around feedback of individual results from genomics research are practical questions on how such results should be fed back, by who and when. However, there has been virtually no work investigating these practical considerations for feedback of individual genetic results in the context of low-and middle-income countries (LMICs), especially in Africa. Consequently, we conducted deliberative focus group discussions with 6 groups of adolescents (

Indexed as

adolescentsAfricaBotswanafeedback of resultsgeneticsparentsPractical considerations

Identifiers

PMID37063478
PMCPMC10101680

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.