Evidence map›Paper›PMID 37059864›Full record

ArticleSpinal cord2023

International spinal cord injury socio-demographic basic data set (version 1.0).

Yuying Chen, Susan Charlifue, Vanessa K Noonan, Peter W New, Gopalkrishna Gururaj, Shinsuke Katoh, Håkon Leiulfsrud, Marcel W Post, Fin Biering-Sørensen

Open access · greenAbstract read
PubMed Publisher
In one paragraph

Article in Spinal cord, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.3field-weighted citation impact, top 42% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 9 institutions in 8 countries.

Yuying ChenDepartment of Physical Medicine and Rehabilitation, University of Alabama at Birmingham, Birmingham, AL, USA. yuyingchen@uabmc.edu.
Susan CharlifueCraig Hospital, Englewood, CO, USA.
Vanessa K NoonanPraxis Spinal Cord Institute, Vancouver, BC, Canada.
Peter W NewSpinal Rehabilitation Service, Caulfield Hospital, Alfred Health, Melbourne, VIC, Australia.
Gopalkrishna GururajDepartment of Epidemiology, Centre for Public health, National Institute of Mental Health and Neuro Sciences, Bangalore, India.
Shinsuke KatohDepartment of Rehabilitation Medicine, Tokushima University Hospital, Tokushima, Japan.
Håkon LeiulfsrudDepartment of Sociology and Political Science, Norwegian University of Science and Technology, Trondheim, Norway.
Marcel W PostCenter of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, Netherlands.ORCID 0000-0002-2205-9404
Fin Biering-SørensenDepartment for Spinal Cord Injuries, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.ORCID 0000-0002-2186-0144
Caulfield Hospital · AUCraig Hospital · USNational Institute of Mental Health and Neurosciences · INNorwegian University of Science and Technology · NOPraxis Spinal Cord Institute · CATokushima University Hospital · JPUniversity Medical Center Groningen · NLUniversity of Alabama at Birmingham · USUniversity of Copenhagen · DK

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

STUDY

designConsensus based on the literature.

objectiveCreate an International Spinal Cord Injury (SCI) Socio-Demographic Basic Data Set (Version 1.0).

settingInternational.

methodsThe development included an iterative process where the authors reviewed existing variables containing socio-demographic variables and created a first dataset draft, which was followed by several revisions through email communications. In addition, the work was conducted in parallel with a similar endeavour within the National Institute of Neurological Disorders and Stroke SCI Common Data Elements project in the United States. Subsequently, harmonization between the two projects was sought. Following this, a review process was initiated, including The International SCI Data Sets Committee, the American Spinal Injury Association (ASIA) Board, and the International Spinal Cord Society (ISCoS) Scientific and Executive Committees, and then by publishing on the respective websites for membership feedback. The draft was sent to about 40 national and international organizations and several interested individuals for feedback. All review comments were discussed in the working group and responded to before the final draft was developed, and finally approved by ASIA Board and the ISCoS Scientific and Executive committees.

resultsThe final International SCI Socio-Demographic Basic Data Set includes the following variables: Date of data collection, Marital status, Household member count, Years of formal education, and Primary occupation.

conclusionThe International SCI Socio-Demographic Basic Data Set will facilitate uniform data collection and reporting of socio-demographic information at the time of injury as well as at post-injury follow-ups to facilitate the evaluation and comparisons across studies.

Indexed as

Spinal Cord InjuriesCommon Data ElementsDatabases, FactualData CollectionDemographyHumansUnited States

Identifiers

PMID37059864
OpenAlexW4365513239

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.