Evidence map›Paper›PMID 37038170›Full record

ArticleBMC palliative care2023

What do health care professionals want to know about assisted dying? Setting the research agenda in New Zealand.

Jessica Young, Jeanne Snelling, Sophie Beaumont, Kate Diesfeld, Ben White, Lindy Willmott, Jacqualine Robinson, Annabel Ahuriri-Driscoll, Gary Cheung, Aida Dehkhoda and 6 more

Abstract read
In one paragraph

Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Jessica YoungTe Herenga Waka - Victoria University of Wellington, Wellington, New Zealand. jessica.young@vuw.ac.nz.
Jeanne SnellingUniversity of Otago, Dunedin, New Zealand.
Sophie BeaumontTe Herenga Waka - Victoria University of Wellington, Wellington, New Zealand.
Kate DiesfeldAuckland University of Technology, Auckland, New Zealand.
Ben WhiteQueensland University of Technology, Brisbane, Australia.
Lindy WillmottQueensland University of Technology, Brisbane, Australia.
Jacqualine RobinsonUniversity of Auckland, Auckland, New Zealand.
Annabel Ahuriri-DriscollUniversity of Canterbury, Christchurch, New Zealand.
Gary CheungUniversity of Auckland, Auckland, New Zealand.
Aida DehkhodaUniversity of Auckland, Auckland, New Zealand.
Richard EganUniversity of Otago, Dunedin, New Zealand.
James JapTōtara Hospice, Auckland, New Zealand.
Te Hurinui Karaka-ClarkeUniversity of Canterbury, Christchurch, New Zealand.
Leanne Manson, Wellington, New Zealand.
Cam McLarenMonash University, Melbourne, Australia.
Janine WintersUniversity of Otago, Dunedin, New Zealand.

Funding

Health Research Council of New Zealand 21/1049
6 · The paper itself

Abstract

backgroundNew Zealand recently introduced law permitting terminally ill people to request and receive assisted dying (AD) in specified circumstances. Given the nature and complexity of this new health service, research is vital to determine how AD is operating in practice.

objectiveTo identify research priorities regarding the implementation and delivery of AD in New Zealand.

methodsUsing an adapted research prioritisation methodology, the researchers identified 15 potential AD research topics. A mixed-methods survey of health professionals was undertaken where respondents were asked to rate the 15 topics according to the relative importance for research to be conducted on each issue. Respondents could also suggest additional research areas, and were invited to participate in a follow-up interview.

resultsOne hundred and nineteen respondents completed the survey. 31% had some experience with AD. The highest rated research topic was the 'effectiveness of safeguards in the Act to protect people'; the lowest rated topic was research into the 'experiences of non-provider (e.g., administrative, cleaning) staff where assisted dying is being provided'. Respondents suggested 49 other research topics. Twenty-six interviews were conducted. Thematic analysis of interview data and open-ended survey questions was undertaken. Six research themes were identified: general factors related to the wider health system; the experiences of health care providers at the bedside; medico-legal issues; the impact of AD; experiences on the day of dying; and the overall effectiveness of the AD system. Key issues for stakeholders included safety of the AD service; ensuring access to AD; achieving equity for 'structurally disadvantaged' groups; and ensuring the well-being of patients, families/whānau, providers and non-providers.

conclusionsBased on early experiences of the implementation of the AD service, health professionals provide important insights into what research should be prioritised post-legalisation of AD. These findings can be used to shape the research agenda so that research may inform law, policy and best practice.

Indexed as

Suicide, AssistedHealth PersonnelHumansNew ZealandResearch PersonnelSurveys and QuestionnairesAssisted dyingEarly implementationHealth professionalsResearch prioritisation

Identifiers

PMID37038170
PMCPMC10084592

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.