Evidence map›Paper›PMID 37026543›Full record

ArticleJournal of the American Heart Association2023

Health-Related Quality of Life and Its Association With Outcomes in Adults With Congenital Heart Disease and Heart Failure: Insight From FRESH-ACHD Registry.

Reaksmei Ly, Clément Karsenty, Pascal Amedro, Sarah Cohen, Olivia Domanski, Francois Godart, Jelena Radojevic, Guy Vaksmann, Nicole Naccache, Anissa Boubrit and 3 more

Open access · goldAbstract read
In one paragraph

Article in Journal of the American Heart Association, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
3.2field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 15 citations in OpenAlex.

  1. Article
  2. Reliability and validation of the German WHOQOL-BREF in adults with congenital heart disease.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  3. Article
  4. Article
  5. Observational
  6. Article
  7. Article
  8. SomaticExperimental and therapeutic medicine · 2024
    Article
  9. Discovery and functional investigation ofAmerican journal of translational research · 2024
    Article
  10. Discovery ofAmerican journal of translational research · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 7 institutions in 1 country.

Reaksmei LyAdult Congenital Heart Disease Unit Hôpital Européen Georges Pompidou Centre de Référence des Malformations Cardiaques Congénitales Complexes Assistance Publique-Hôpitaux de Paris Paris University Paris France.ORCID 0000-0001-5756-8105
Clément KarsentyCongenital Cardiology Unit Children Hospital CHU Toulouse Institut Des Maladies Métaboliques et Cardiovasculaires Université de Toulouse INSERM U1048, I2MC Toulouse France.
Pascal AmedroDepartment of Paediatric and Adult Congenital Cardiology Bordeaux University Hospital Bordeaux France.ORCID 0000-0003-3649-0294
Sarah CohenDivision of Congenital Heart Disease, Expert Center for Complex Congenital Heart Disease (M3C Network) Marie Lannelongue Hospital Groupe Hospitalier Paris Saint Joseph Inserm UMRs-999 Paris-Saclay University Le Plessis Robinson France.ORCID 0000-0001-9956-9341
Olivia DomanskiCHRU de Lille University Lille Nord-de-France Faculté de médecine, hôpital cardiologique, service des maladies cardiovasculaires infantiles et congénitales Lille France.ORCID 0000-0002-1048-7081
Francois GodartCardiologie Congenitale Strasbourg France.
Jelena RadojevicDivision of Congenital Heart Disease, Expert Center for Complex Congenital Heart Disease (M3C Network) Marie Lannelongue Hospital Groupe Hospitalier Paris Saint Joseph Inserm UMRs-999 Paris-Saclay University Le Plessis Robinson France.
Guy VaksmannDepartment of Congenital Heart Disease Hôpital Privé de La Louvière Lille France.ORCID 0000-0002-2061-1437
Nicole NaccacheCommission des Registres French Society of Cardiology Paris France.
Anissa BoubritAdult Congenital Heart Disease Unit Hôpital Européen Georges Pompidou Centre de Référence des Malformations Cardiaques Congénitales Complexes Assistance Publique-Hôpitaux de Paris Paris University Paris France.
Vincent BatailleDepartment of Cardiology Rangueil Toulouse University Hospital University Paul Sabatier Toulouse France.ORCID 0000-0002-5780-2333
Sébastien HascoetDivision of Congenital Heart Disease, Expert Center for Complex Congenital Heart Disease (M3C Network) Marie Lannelongue Hospital Groupe Hospitalier Paris Saint Joseph Inserm UMRs-999 Paris-Saclay University Le Plessis Robinson France.ORCID 0000-0002-8695-0503
Magalie LadouceurAdult Congenital Heart Disease Unit Hôpital Européen Georges Pompidou Centre de Référence des Malformations Cardiaques Congénitales Complexes Assistance Publique-Hôpitaux de Paris Paris University Paris France.ORCID 0000-0002-4325-3521
Inserm · FRAssistance Publique – Hôpitaux de Paris · FRCentre Hospitalier Universitaire de Lille · FRHôpital Privé Jean Mermo · FRSociété de Réanimation de Langue Française · FRUniversité de Bordeaux · FRUniversité Toulouse III - Paul Sabatier · FR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background Quality of Life (QoL) is a prognostic factor in heart failure (HF) of patients with acquired cardiac disease. The aim of this study was to determine the predictive value of QoL on outcomes in adults with congenital heart disease (ACHD) and HF. Methods and Results Quality of life of 196 adults with congenital heart disease with clinical heart failure (HF) (mean age: 44.3±13.8 years; 51% male; 56% with complex congenital heart disease; 47% New York Heart Association class III/IV) included in the prospective multicentric registry FRESH-ACHD (French Survey on Heart Failure-Adult with Congenital Heart Disease) was assessed using the 36-Item Short Form Survey (SF-36), a patient-reported survey. The primary end point was defined by all-cause death, HF-related hospitalization, heart transplantation, and mechanical circulatory support. At 12 months, 28 (14%) patients reached the combined end point. Patients with low quality of life experienced major adverse events more frequently (logrank

Indexed as

Heart Defects, CongenitalHeart FailureAdultFemaleHumansMaleMiddle AgedProspective StudiesQuality of LifeRegistriescongenital heart diseaseheart failurequality of life

Identifiers

PMID37026543
PMCPMC10227248
OpenAlexW4362692417

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.