ArticlePalliative care and social practice2023
Dying at home for people experiencing financial hardship and deprivation: How health and social care professionals recognise and reflect on patients' circumstances.
Article in Palliative care and social practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 3 syntheses or guidelines pooled it, 16 citations in OpenAlex.
- Relevance and consequence of economic and social resources of severely ill persons and their informal caregivers at the end-of-life: a systematic review of qualitative studies.BMC palliative care · 2025Pooled it
- First generation migrants' experiences of terminal illness: a systematic review of diasporic dying.BMC palliative care · 2025Pooled it
- A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness.Palliative medicine · 2024Pooled it
- Article
- Policy gaps regarding social homecare in the context of end-of-life; a policy document analysis.BMC palliative care · 2026Article
- Relationship Between Palliative Care and Location of Death Among People With Opioid Use Disorder: A Retrospective Cohort Study.Journal of palliative care · 2026Article
- Exploring the factors that prevent or facilitate palliative care at 'home' for adults experiencing structural vulnerability: a scoping review.International journal for equity in health · 2026Article
- Social determinants of where people die: A study of moderators and mediators using linked UK Census and mortality data.SSM - population health · 2025Article
- Is Assisted Dying Really a Matter for Medical Regulation?The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2025Article
- Social support sources for people with palliative care needs at home: a scoping review.BMC palliative care · 2025Article
- The role of the municipal welfare domain in palliative care: exploring the views of coordinators of Dutch regional palliative care networks.Palliative care and social practice · 2025Article
- The central role of housing key workers in supporting healthcare interactions for people experiencing homelessness and implications for palliative care: a qualitative study.BMC palliative care · 2024Article
- We need to talk about social class: Why theories of social class matter for understanding inequities in palliative and end-of-life care.Palliative medicine · 2024Article
- 'Beyond the Reach of Palliative Care': A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying.Qualitative health research · 2024Article
- Reflecting on choices and responsibility in palliative care in the context of social disadvantage.Palliative care and social practice · 2023Review
- Patients' Experiences in the Transition From Hospital to Home Palliative Care: A Systematic Review and Thematic Synthesis of Qualitative Studies.SAGE open nursingReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: International palliative care policy often views home as the most desirable location for end-of-life care. However, people living in more deprived areas can worry about dying in poor material circumstances and report more benefits from hospital admission at the end of life. There is increasing recognition of inequities in the experience of palliative care, particularly for people living in more deprived areas. Promoting an equity agenda in palliative care means building healthcare professionals' capacity to respond to the social determinants of health when working with patients near the end of their life. Objectives: The purpose of this article is to present data which reveal how some health and social care professionals view home dying for people experiencing financial hardship and deprivation. Design: This work was framed by social constructionist epistemology. Methods: Semi-structured qualitative interviews ( Analysis: Thematic analysis was used to analyse the interview data. Discussion: Our findings suggest that healthcare staff relied on physical clues in the home environment to identify if people were experiencing financial hardship, found discussions around poverty challenging and lacked awareness of how inequities intersect at the end of life. Health professionals undertook 'placing' work to try and make the home environment a suitable space for dying, but some barriers were seen as insurmountable. There was recognition that increased partnership working and education could improve patient experiences. We argue further research is needed to capture the perspectives of individuals with direct lived experience of end-of-life care and financial hardship.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.