Evidence map›Paper›PMID 37023443›Full record

ArticleJMIR mental health2023

Tailoring a Digital Mental Health Program for Patients With Sickle Cell Disease: Qualitative Study.

Cara Nikolajski, Julia O'Brien, Emily Nardo, Eva Szigethy, Charles Jonassaint

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in JMIR mental health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04587661 (Designing an Implementation Strategy for Delivering Routine Mental Health Screening and Treatment for Adolescents and Adults With Sickle Cell Disease), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.6field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04587661 naterminatednot on this map

Designing an Implementation Strategy for Delivering Routine Mental Health Screening and Treatment for Adolescents and Adults With Sickle Cell Disease

TypeinterventionalSponsorUniversity of PittsburghRan2020 to 2023Enrolled21ConditionsSickle Cell Disease, Depression, AnxietyArmsoff-the-shelf digital CBT, adapted digital CBT
3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 8 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Cara NikolajskiCenter for High-Value Health Care, University of Pittsburgh Medical Center, Pittsburgh, PA, United States.ORCID https://orcid.org/0000-0002-4922-6663
Julia O'BrienDepartment of Health and Community Systems, School of Nursing, University of Pittsburgh, Pittsburgh, PA, United States.ORCID https://orcid.org/0000-0002-3208-3344
Emily NardoCenter for Research on Health Care, University of Pittsburgh, Pittsburgh, PA, United States.ORCID https://orcid.org/0000-0002-0921-2814
Eva SzigethyDepartment of Psychiatry, School of Medicine, University of Pittsburgh, Pittsburgh, PA, United States.ORCID https://orcid.org/0000-0001-6783-581X
Charles JonassaintCenter for Research on Health Care, University of Pittsburgh, Pittsburgh, PA, United States.ORCID https://orcid.org/0000-0002-5662-5806
University of Pittsburgh · USUniversity of Pittsburgh Medical Center · US

Funding

Technology Research in Chronic & Critical IllnessT32NR008857 · NINR · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI Young Ji Lee · 2005 to 2026
$4.0M
Designing an Implementation Strategy for Delivering Routine Mental Health Screening and Treatment for Adolescents and Adults with Sickle Cell DiseaseR34MH125152 · NIMH · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI JONASSAINT, CHARLES RICHARD · 2020 to 2021
$706k
NIMH NIH HHS R34 MH125152NINR NIH HHS T32 NR008857
6 · The paper itself

Abstract

backgroundDepression and other mental health disorders are prevalent among people living with chronic health conditions. Although digital cognitive behavioral therapy (CBT) is considered an effective treatment, African American individuals are less likely to engage in and adhere to digital therapies for mental health disorders compared with White individuals.

objectiveThe aim of this study was to understand digital CBT mental health treatment perceptions and preferences of African American individuals with sickle cell disease (SCD).

methodsAfrican American individuals with SCD from various US locations were invited to participate in a series of focus groups. Participants were introduced to a health coach-supported mental health app and then asked a series of questions about the usability and appeal of the program as well as, more generally, what would make a digital mental health program effective for them. The authors reviewed the focus group transcripts and conducted a qualitative analysis of the results.

resultsA total of 25 people participated in 5 focus groups. Overall, 5 primary themes emerged regarding how app content and related coaching could be modified to enhance digital CBT engagement. These themes included connection with others living with SCD, the personalization of app content and coaching, characteristics of coaches, journaling and pain tracking, and considerations for optimal engagement.

conclusionsEnhancing the user experience by making digital CBT tools relevant to patient populations is critical for optimizing program engagement and its uptake. Our findings highlight potential strategies to modify and design digital CBT tools for users with SCD and may also be applicable to patients with other chronic conditions.

trial registrationClinicalTrials.gov NCT04587661; https://clinicaltrials.gov/ct2/show/NCT04587661.

Indexed as

cognitive behavioral therapydigital cognitive behavioral therapydigital healthmental healthsickle cell disease

Identifiers

PMID37023443
PMCPMC10131651
OpenAlexW4362665188

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.