Evidence map›Paper›PMID 37022585›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2023

Patient-reported outcomes and patient-reported outcome measures in liver transplantation: a scoping review.

Ali Vedadi, Roula Khairalla, Adrian Che, Ahsas Nagee, Mohammed Saqib, Ali Ayub, Aghna Wasim, Sara Macanovic, Ani Orchanian-Cheff, Nazia Selzner-Malekkiani and 2 more

Registry-linked trialAbstract readScoping Review

PubMed Publisher

In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06577480 (Investigation of Validity and Reliability of the Turkish Version of the Post-Liver Transplant Quality of Life), which is not on this map. Cited by 6 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it

0cells of the map it votes in

6citing papers in PubMed, 2 pooled it

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06577480 active not recruitingnot on this mapstarted 2024, after this paper: background citation

Investigation of Validity and Reliability of the Turkish Version of the Post-Liver Transplant Quality of Life (pLTQ) Questionnaire

TypeobservationalSponsorHacettepe UniversityRan2024 to 2026Enrolled80ConditionsLiver Transplant Disorder, Quality of LifeArmsNo intervention

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 2 syntheses or guidelines pooled it.

Identifying and understanding the health-related quality of life outcomes experienced by solid organ transplant recipients: a systematic review of qualitative research.Journal of patient-reported outcomes · 2026
Pooled it
Patient-reported outcome measures (PROMs) used among liver transplant recipients: a systematic review and methodological quality appraisal.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
Pooled it
Patient-reported Outcome Measures in Solid Organ Transplant Recipients: Current use, Challenges, and Recommendations for Future use.Transplantation · 2026
Review
Illness perception and psychosocial adjustment in young and middle-aged liver transplant recipients during the early postoperative period: the serial mediating roles of perceived social support and quality of life.Frontiers in psychology · 2026
Article
Outcome reporting for liver transplantation machine perfusion studies: a systematic review.EClinicalMedicine · 2026
Review
Impact of psychological resilience and social support on psycho-social adjustment in postoperative patients with primary hepatocellular carcinoma: mediating effects of fear of progression.Frontiers in psychology · 2024
Article

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Ali VedadiMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Roula KhairallaMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Adrian CheMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Ahsas NageeMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Mohammed SaqibMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Ali AyubMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Aghna WasimMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Sara MacanovicMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Ani Orchanian-CheffLibrary and Information Services, University Health Network, Toronto, ON, Canada.

Nazia Selzner-MalekkianiMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada.

Susan BartlettDepartment of Medicine, McGill University, Montreal, QC, Canada.

Istvan MucsiMulti-Organ Transplant Program, University Health Network and University of Toronto, Toronto, ON, Canada. istvan.mucsi@utoronto.ca.ORCID http://orcid.org/0000-0002-4781-4699

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionGeneric or condition-specific Patient-reported Outcome Measures (PROMs) are used to measure physical, mental, and social aspects of health to promote patient-centered care. This scoping review aims to identify and summarize generic and condition-specific PRO domains and PROMs that have been assessed and used in liver transplant (LT) candidates and recipients.

methodsWe searched Medline, Embase, Cochrane Database of Systematic Reviews and Register of Trials, PsychInfo, and CINAHL from inception to 08/26/2020. Included studies addressed a PRO or PROM in LT candidates or recipients.

resultsAfter screening, 341 studies yielded 189 unique PRO domains. Mental health domains (depression, anxiety, and guilt) were most frequently assessed, followed by domains of physical and social health. Fifty-one generic and three condition-specific unique PROMs were identified, with only 13% (n = 45) of studies including condition-specific tools. DISCUSSION: The most frequent PROMs were the SF-36, Nottingham Health Profile, Hospital Anxiety and Depression Scale, followed by the Liver Disease Quality of Life (LDQoL). Very few studies used transplant-specific PROMs, which may partly be related to the scarcity of LT-specific instruments. We will use these results in future qualitative research to identify PROs and PROMs to build an electronic PROM toolkit to facilitate patient-centered LT care.

Indexed as

Liver TransplantationHumansMental HealthPatient Reported Outcome MeasuresQuality of LifeLiver disease quality of life (LDQoL)Liver transplantPatient-reported outcome measures (PROM)Patient-reported outcomes (PRO)Quality of life

Identifiers

PMID37022585

DOI10.1007/s11136-023-03405-1

What OpenQuestion holds

Textmetadata

Read underepoch 390

Registered trials

NCT06577480ClinicalTrials.gov

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.