ArticleBMJ paediatrics open2023
Shared decision-making for children with medical complexity in community health services: a scoping review.
Article in BMJ paediatrics open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The elements of end-of-life care provision in paediatric intensive care units: a systematic integrative review.BMC palliative care · 2024Pooled it
- Interventions to Promote Pediatric Shared Decision-Making and Child Engagement in Primary Care: A Systematic Review.Academic pediatricsPooled it
- Decisional conflict levels and associated factors among parents of pediatric patients undergoing emergency gastric lavage: a cross‑sectional survey.Translational pediatrics · 2026Article
- Perceived Relational Harm Across Children's Disability Constellations in Parent-Professional Interactions.Child: care, health and development · 2026Article
- Home-Based Parenting Strategies and Challenges of Primary Parental Caregivers of Children With Medical Complexity in Japan: A Qualitative Study.Child: care, health and development · 2026Article
- AI-assisted consent in paediatric medicine: ethical implications of using large language models to support decision-making.Journal of medical ethics · 2026Article
- Associations of Environmental Modifications and Collaborative Care Environments with Positive Health in Families of Children with Medical Complexity: A Secondary Analysis.Nursing reports (Pavia, Italy) · 2026Article
- Nurse leaders' perceptions of organisational policies, guidelines, and practices that enact children and young people's involvement in hospitals.Journal of child health care : for professionals working with children in the hospital and community · 2026Article
- "What's in It for the Kid?": An Approach for the Bedside Ethicist.Children (Basel, Switzerland) · 2026Article
- Interventions supporting the empowerment of parent carers of children with neurodisability and other long-term health conditions: A scoping review.Developmental medicine and child neurology · 2026Article
- Article
- Physical activity and competitive sport safety for children affected by inherited cardiac conditions and selected acquired cardiomyopathies: emerging evidence and areas for further inquiry.European journal of pediatrics · 2026Review
- Developing a Parent-Focused Decision Aid to Promote Child-Inclusive Shared Decision-Making in Pediatric Oral Immunotherapy: Pragmatic Exploratory Feasibility Study.Journal of participatory medicine · 2026Article
- Shared decision-making in pediatric physical therapy: A qualitative study among adolescents, parents, and physical therapists.PloS one · 2026Article
- Development of a paediatric asthma shared decision-making tool: intervention design and evaluation.BMC medical informatics and decision making · 2025Article
- A scoping review on adaptations incorporated into decision aids for children and adolescents (C&A) cohorts.Translational pediatrics · 2025Review
- Psychometric Validation and Reliability of the 9-Item Shared Decision-Making Questionnaire: A Systematic Review.Iranian journal of public health · 2025Review
- Understanding the complexity of decision-making for mothers of young children with ambulatory cerebral palsy: A qualitative phenomenological study.Developmental medicine and child neurology · 2025Article
- Understanding Preferences, Needs, and Expectations for Pharmaceutical Treatment of Symptomatic Uterine Fibroids Based on Surveys of Healthcare Providers and Patients.International journal of women's health · 2025Article
- Does Early Life Adversity Limit Delivery of High-Quality Health Care Among Children?Child: care, health and development · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundChildren with medical complexity is an increasing population whose parents and healthcare providers face multiple decisions. Shared decision-making is a process where patients, their families and healthcare providers collaborate to make decisions based on clinical evidence and informed preferences of the family. Shared decision-making has benefits for the child, family and healthcare providers, including improved parental understanding of the child's difficulties, increased participation, improved coping skills and more efficient healthcare use. It is, however, poorly implemented. AIMS AND
methodsA scoping review was conducted to explore shared decision-making for children with medical complexity in community health services, including how shared decision-making is defined in research, how it is implemented, including barriers and facilitators and recommendations for research. Six databases were systematically searched for papers published in English up to May 2022: Medline, CINAHL, EMBASE, PsycINFO, PubMed, Cochrane Database of Systematic Reviews and sources of grey literature. The review is reported according to the Preferred Reporting Items for Scoping Reviews.
resultsThirty sources met the inclusion criteria. Most factors can either be a facilitator or barrier to shared decision-making depending on the context. Two significant barriers to shared decision-making in this population include uncertainty about the child's diagnosis, prognosis, and treatment options and the presence of hierarchy and power imbalance during clinical encounters with healthcare providers. Further influencing factors include continuity of care, the availability of accurate, accessible, adequate, and balanced information and the interpersonal and communication skills of parents and healthcare providers.
conclusionUncertainty about diagnosis, prognosis and treatment outcomes for children with medical complexity are additional challenges to the known barriers and facilitators to shared decision-making in community health services. Effective implementation of shared decision-making requires advancement of the evidence base for children with medical complexity, reducing power imbalance in clinical encounters, improving continuity of care, and improving the availability and accessibility of information resources.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.