Evidence map›Paper›PMID 37003266›Full record

ArticleApplied clinical informatics2023

Evaluation of Patient-Friendly Diagnosis Clarifications in a Hospital Patient Portal.

Hugo J T van Mens, Gaby E G Hannen, Remko Nienhuis, Roel J Bolt, Nicolette F de Keizer, Ronald Cornet

Abstract read
In one paragraph

Article in Applied clinical informatics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Hugo J T van MensDepartment of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Gaby E G HannenDepartment of Implementation and Support, ChipSoft B.V., Amsterdam, The Netherlands.
Remko NienhuisManaging Board, Melius Health Informatics, Gouda, The Netherlands.
Roel J BoltDepartment of Pediatrics, Franciscus Gasthuis & Vlietland, Rotterdam and Schiedam, The Netherlands.
Nicolette F de KeizerDepartment of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Ronald CornetDepartment of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMedical data can be difficult to comprehend for patients, but only a limited number of patient-friendly terms and definitions are available to clarify medical concepts. Therefore, we developed an algorithm that generalizes diagnoses to more general concepts that do have patient-friendly terms and definitions in SNOMED CT. We implemented the generalizations, and diagnosis clarifications with synonyms and definitions that were already available, in the problem list of a hospital patient portal.

objectiveWe aimed to assess the extent to which the clarifications cover the diagnoses in the problem list, the extent to which clarifications are used and appreciated by patient portal users, and to explore differences in viewing problems and clarifications between subgroups of users and diagnoses.

methodsWe measured the coverage of diagnoses by clarifications, usage of the problem list and the clarifications, and user, patient and diagnosis characteristics with aggregated, routinely available electronic health record and log file data. Additionally, patient portal users provided quantitative and qualitative feedback about the clarification quality.

resultsOf all patient portal users who viewed diagnoses on their problem list (

conclusionThis study shows that the clarifications are used and appreciated by patient portal users. Further research and development will be dedicated to the maintenance and further quality improvement of the clarifications.

Indexed as

Patient PortalsAlgorithmsElectronic Health RecordsHumansInpatientsSystematized Nomenclature of Medicine

Identifiers

PMID37003266
PMCPMC10284629

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.