Evidence map›Paper›PMID 36998280›Full record

Observational studyFrontiers in public health2023

Provision of palliative and end-of-life care in UK care homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy.

Andy Bradshaw, Sophia Ostler, Claire Goodman, Izabele Batkovskyte, Clare Ellis-Smith, India Tunnard, Anna E Bone, Stephen Barclay, Martin Vernon, Irene J Higginson and 2 more

Full text readObservational Study
In one paragraph

Observational study in Frontiers in public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Andy BradshawKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.
Sophia OstlerKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.
Claire GoodmanCenter for Research in Public Health and Community Care (CRIPACC), University of Hertfordshire, Hatfield, United Kingdom.
Izabele BatkovskyteKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.
Clare Ellis-SmithKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.
India TunnardKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.
Anna E BoneKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.
Stephen BarclayPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, United Kingdom.
Martin VernonTameside and Glossop Integrated Care NHS Foundation Trust, Ashton-under-Lyne, United Kingdom.
Irene J HigginsonKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.
Catherine J EvansKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.
Katherine E SleemanKing's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, United Kingdom.

Funding

Department of Health NIHR202326MRF_ MRF-145-0019-DG-HIGG-C0951
6 · The paper itself

Abstract

Introduction: Little consideration has been given to how the provision of palliative and end-of-life care in care homes was affected by COVID-19. The aims of this study were to: (i) investigate the response of UK care homes in meeting the rapidly increasing need for palliative and end-of-life care during the COVID-19 pandemic and (ii) propose policy recommendations for strengthening the provision of palliative and end-of-life care within care homes. Materials and methods: A mixed methods observational study was conducted, which incorporated (i) an online cross-sectional survey of UK care homes and (ii) qualitative interviews with care home practitioners. Participants for the survey were recruited between April and September 2021. Survey participants indicating availability to participate in an interview were recruited using a purposive sampling approach between June and October 2021. Data were integrated through analytic triangulation in which we sought areas of convergence, divergence, and complementarity. Results: There were 107 responses to the survey and 27 interviews. Conclusion: Relationship-centered care is a key component of high-quality palliative and end-of-life care in care homes, but this was disrupted during the COVID-19 pandemic. We identify key policy priorities to equip care homes with the resources, capacity, and expertise needed to deliver palliative and end-of-life care: (i) integration within health and social care systems, (ii) digital inclusivity, (iii) workforce development, (iv) support for care home managers, and (v) addressing (dis)parities of esteem. These policy recommendations inform, extend, and align with policies and initiatives within the UK and internationally.

Indexed as

COVID-19Terminal CareCross-Sectional StudiesHumansPandemicsUnited Kingdomcare homesCOVID-19end-of-life caremixed methodsobservationalpalliative carepolicy

Identifiers

PMID36998280
PMCPMC10043445

What OpenQuestion holds

Textfull text, public
LicenceCC BY
measurements read261
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.