Evidence map›Paper›PMID 36997975›Full record

ArticleResearch involvement and engagement2023

Co-production of a feasibility trial of pacing interventions for Long COVID.

Grace M Turner, Christel McMullan, Olalekan Lee Aiyegbusi, Sarah E Hughes, Anita Walker, Felicity Jeyes, Yvonne Adler, Amy Chong, Lewis Buckland, David Stanton and 3 more

Open access · goldAbstract read
In one paragraph

Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
2.5field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 12 citations in OpenAlex.

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  6. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 5 institutions in 1 country.

Grace M TurnerInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
Christel McMullanInstitute of Applied Health Research, University of Birmingham, Birmingham, UK. c.mcmullan@bham.ac.uk.
Olalekan Lee AiyegbusiInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
Sarah E HughesInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
Anita WalkerInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
Felicity JeyesPatient Partner, Centre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
Yvonne AdlerPatient Partner, Centre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
Amy ChongPatient Partner, Centre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
Lewis BucklandPatient Partner, Centre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
David StantonPatient Partner, Centre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
Elin Haf DaviesAparito Ltd, Wrexham, Wales.
Shamil HaroonInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
Melanie CalvertInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
University of Birmingham · GBBirmingham City University · GBNIHR Applied Research Collaboration WestNIHR Birmingham Biomedical Research Centre · GBNIHR Surgical Reconstruction and Microbiology Research Centre · GB

Funding

Medical Research Council MC_PC_20050
6 · The paper itself

Abstract

backgroundThe high incidence of COVID-19 globally has led to a large prevalence of Long COVID but there is a lack of evidence-based treatments. There is a need to evaluate existing treatments for symptoms associated with Long COVID. However, there is first a need to evaluate the feasibility of undertaking randomised controlled trials of interventions for the condition. We aimed to co-produce a feasibility study of non-pharmacological interventions to support people with Long COVID.

methodsA consensus workshop on research prioritisation was conducted with patients and other stakeholders. This was followed by the co-production of the feasibility trial with a group of patient partners, which included the design of the study, the selection of interventions, and the production of dissemination strategies.

resultsThe consensus workshop was attended by 23 stakeholders, including six patients. The consensus from the workshop was to develop a clinical trial platform that focused on testing different pacing interventions and resources. For the co-production of the feasibility trial, patient partners selected three pacing resources to evaluate (video, mobile application, and book) and co-designed feasibility study processes, study materials and undertook usability testing of the digital trial platform.

conclusionIn conclusion, this paper reports the principles and process used to co-produce a feasibility study of pacing interventions for Long COVID. Co-production was effective and influenced important aspects of the study.

Indexed as

CoproductionFatigueFeasibilityLong COVIDPacingPatient and public involvementPost-acute sequelae of SARS-CoV-2 infection (PASC)Post Covid-19 condition

Identifiers

PMID36997975
PMCPMC10061378
OpenAlexW4361271896

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.