Evidence map›Paper›PMID 36994658›Full record

ArticleJournal of genetic counseling2023

Variability in sickle cell knowledge by sickle cell status.

Fiona Gilpin-Macfoy, Mindy J Perilla, Laura M Koehly

Abstract read
In one paragraph

Article in Journal of genetic counseling, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Fiona Gilpin-MacfoySocial and Behavioral Research Branch, National Human Genome Research Institute, National Institute of Health, Bethesda, Maryland, USA.ORCID 0000-0002-8656-2818
Mindy J PerillaOffice of the Clinical Director, National Human Genome Research Institute, Bethesda, Maryland, USA.ORCID 0009-0004-1801-2795
Laura M KoehlySocial and Behavioral Research Branch, National Human Genome Research Institute, National Institute of Health, Bethesda, Maryland, USA.ORCID 0000-0003-4588-2898

Funding

The influence of familial social context on risk dissemination and copingZIAHG200335 · NHGRI · NATIONAL HUMAN GENOME RESEARCH INSTITUTE · PI KOEHLY, LAURA M · 2009 to 2025
$13.6M
The influence of familial social context on risk dissemination and copingZ01HG200335 · NHGRI · NATIONAL HUMAN GENOME RESEARCH INSTITUTE · PI KOEHLY, LAURA M · 2006 to 2008
$1.2M
Intramural NIH HHS Z01 HG200335Intramural NIH HHS ZIA HG200335
6 · The paper itself

Abstract

Disease-specific knowledge allows individuals with sickle cell disease, sickle cell trait, and unaffected family members alike to make informed decisions and support those affected by the condition. The current study assesses how sickle cell knowledge varies by disease status within families affected by sickle cell disease. One hundred seventy-nine participants from 84 families completed an online survey and telephone interview. Generalized linear models, with generalized estimating equations, were fitted to evaluate differences in both item-level responses and total scores on the Sickle Cell Knowledge Scale by sickle cell status. Those with negative or unknown sickle cell status scored significantly lower than those with sickle cell disease or trait, despite being related to someone with sickle cell disease (χ

Indexed as

Anemia, Sickle CellSickle Cell TraitEducational StatusHealth Knowledge, Attitudes, PracticeHumansSurveys and Questionnairesgenetic literacyknowledgesickle cell diseasesickle cell trait

Identifiers

PMID36994658
PMCPMC11980774

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.