Evidence map›Paper›PMID 36982084›Full record

ArticleInternational journal of environmental research and public health2023

School Problems and School Support for Children with Narcolepsy: Parent, Teacher, and Child Reports.

Karin Janssens, Pauline Amesz, Yvonne Nuvelstijn, Claire Donjacour, Danielle Hendriks, Els Peeters, Laury Quaedackers, Nele Vandenbussche, Sigrid Pillen, Gert Jan Lammers

Open access · goldFull text read
In one paragraph

Article in International journal of environmental research and public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.9field-weighted citation impact, top 29% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 5 citations in OpenAlex.

  1. Review
  2. Article
  3. Article
  4. Effort/reward imbalance and comorbidities burden in academic and professional careers of patients with narcolepsy type 1.Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine · 2025
    Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 4 institutions in 2 countries.

Karin JanssensSleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands.
Pauline AmeszSleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands.
Yvonne NuvelstijnSleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands.
Claire DonjacourSleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands.
Danielle HendriksSleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands.
Els PeetersSleeping Center, Medical Centre Haaglanden, 2512 VA The Hague, The Netherlands.ORCID 0009-0003-5610-719X
Laury QuaedackersCenter for Sleep Medicine, Kempenhaeghe, 5591 VE Heeze, The Netherlands.
Nele VandenbusscheCenter for Sleep Medicine, Kempenhaeghe, 5591 VE Heeze, The Netherlands.
Sigrid PillenSleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands.
Gert Jan LammersSleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands.ORCID 0000-0003-4755-7060
Stichting Epilepsie Instellingen Nederland · NLKempenhaeghe · NLMedisch Centrum Haaglanden · NLLeiden University Medical Center · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo assess problems faced by children with type 1 narcolepsy (NT1) at school and obtain insight into potential interventions for these problems.

methodsWe recruited children and adolescents with NT1 from three Dutch sleep-wake centers. Children, parents, and teachers completed questionnaires about school functioning, interventions in the classroom, global functioning (DISABKIDS), and depressive symptoms (CDI).

resultsEighteen children (7-12 years) and thirty-seven adolescents (13-19 years) with NT1 were recruited. Teachers' most frequently reported school problems were concentration problems and fatigue (reported by about 60% in both children and adolescents). The most common arrangements at school were, for children, discussing school excursions (68%) and taking a nap at school (50%) and, for adolescents, a place to nap at school (75%) and discussing school excursions (71%). Regular naps at home on the weekend (children 71% and adolescents 73%) were more common than regular naps at school (children 24% and adolescents 59%). Only a minority of individuals used other interventions. School support by specialized school workers was associated with significantly more classroom interventions (3.5 versus 1.0 in children and 5.2 versus 4.1 in adolescents) and napping at school, but not with better global functioning, lower depressive symptom levels, or napping during the weekends.

conclusionsChildren with NT1 have various problems at school, even after medical treatment. Interventions to help children with NT1 within the classroom do not seem to be fully implemented. School support was associated with the higher implementation of these interventions. Longitudinal studies are warranted to examine how interventions can be better implemented within the school.

Indexed as

Educational PersonnelNarcolepsyAdolescentChildHumansSchoolsSleepchildrennarcolepsy type 1quality of lifeschool functioningschool support

Identifiers

PMID36982084
PMCPMC10049178
OpenAlexW4324383450

What OpenQuestion holds

Textfull text, public
LicenceCC BY
measurements read22
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.