Evidence map›Paper›PMID 36981983›Full record

Trial reportInternational journal of environmental research and public health2023

Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries: Lessons Learned from the ME-WE Project.

Francesco Barbabella, Lennart Magnusson, Licia Boccaletti, Giulia Casu, Valentina Hlebec, Irena Bolko, Feylyn Lewis, Renske Hoefman, Rosita Brolin, Sara Santini and 12 more

Open access · goldFull text readRandomized Controlled Trial
In one paragraph

Trial report in International journal of environmental research and public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
2.3field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Being a Young Carer in Portugal: The Impact of Caring on Adolescents' Life Satisfaction.International journal of environmental research and public health · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors at 11 institutions in 7 countries.

Francesco BarbabellaDepartment of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden.
Lennart MagnussonDepartment of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden.
Licia BoccalettiAnziani e Non Solo Società Cooperativa Sociale, Via Lenin 55, 41012 Carpi, Italy.
Giulia CasuAnziani e Non Solo Società Cooperativa Sociale, Via Lenin 55, 41012 Carpi, Italy.ORCID 0000-0001-5441-3044
Valentina HlebecFaculty of Social Sciences, University of Ljubljana, Kardeljeva pl. 5, 1000 Ljubljana, Slovenia.
Irena BolkoFaculty of Social Sciences, University of Ljubljana, Kardeljeva pl. 5, 1000 Ljubljana, Slovenia.
Feylyn LewisSchool of Nursing, Vanderbilt University, Godchaux Hall 179, 461 21st Ave S, Nashville, TN 37240, USA.ORCID 0000-0003-2306-8182
Renske HoefmanThe Netherlands Institute for Social Research (SCP), Postbus 16164, 2500 BD The Hague, The Netherlands.ORCID 0000-0003-4533-2562
Rosita BrolinDepartment of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden.
Sara SantiniCentre for Socio-Economic Research on Aging, IRCCS INRCA-National Institute of Health and Science on Aging, Via Santa Margherita 5, 60124 Ancona, Italy.ORCID 0000-0003-4705-4631
Marco SocciCentre for Socio-Economic Research on Aging, IRCCS INRCA-National Institute of Health and Science on Aging, Via Santa Margherita 5, 60124 Ancona, Italy.ORCID 0000-0001-9093-2167
Barbara D'AmenCentre for Socio-Economic Research on Aging, IRCCS INRCA-National Institute of Health and Science on Aging, Via Santa Margherita 5, 60124 Ancona, Italy.ORCID 0000-0002-8986-5216
Yvonne de JongVilans-The National Centre of Expertise for Long-Term Care in The Netherlands, Churchilllaan 11, 3527 GV Utrecht, The Netherlands.
Tamara BouwmanVilans-The National Centre of Expertise for Long-Term Care in The Netherlands, Churchilllaan 11, 3527 GV Utrecht, The Netherlands.
Nynke de JongVilans-The National Centre of Expertise for Long-Term Care in The Netherlands, Churchilllaan 11, 3527 GV Utrecht, The Netherlands.
Agnes LeuInstitute for Biomedical Ethics, Medical Faculty, University of Basel, Bernoullistrasse 28, 4056 Basel, Switzerland.ORCID 0000-0002-5451-837X
Daniel PhelpsDepartment of Health, Kalaidos University of Applied Sciences, Gloriastrasse 18a, 8006 Zurich, Switzerland.
Elena GuggiariDepartment of Health, Kalaidos University of Applied Sciences, Gloriastrasse 18a, 8006 Zurich, Switzerland.ORCID 0000-0002-8656-9825
Alexandra WirthDepartment of Health, Kalaidos University of Applied Sciences, Gloriastrasse 18a, 8006 Zurich, Switzerland.
Vicky MorganCarers Trust, 32-36 Loman Street, London SE1 OEH, UK.
Saul BeckerSchool of Education and Social Work, University of Sussex, Falmer, Brighton BN1 9RG, UK.
Elizabeth HansonDepartment of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden.ORCID 0000-0001-7609-4822
Linnaeus University · SEResearch Institute on Sustainable Economic Growth · ITKalaidos University of Applied Sciences · CHUniversity of Ljubljana · SICarers Trust · GBManchester Metropolitan University · GBNetherlands Institute for Social Research · NLUniversity of Basel · CHUniversity of Bologna · ITUniversity of Sussex · GBUniversity of Winchester · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Young carers provide a substantial amount of care to family members and support to friends, yet their situation has not been actively addressed in research and policy in many European countries or indeed globally. Awareness of their situation by professionals and among children and young carers themselves remains low overall. Thus, young carers remain a largely hidden group within society. This study reports and analyses the recruitment process in a multi-centre intervention study offering psychosocial support to adolescent young carers (AYCs) aged 15-17 years. A cluster-randomised controlled trial was designed, with recruitment taking place in Italy, the Netherlands, Slovenia, Sweden, Switzerland and the United Kingdom exploiting various channels, including partnerships with schools, health and social services and carers organisations. In total, 478 AYCs were recruited and, after screening failures, withdrawals and initial dropouts, 217 were enrolled and started the intervention. Challenges encountered in reaching, recruiting and retaining AYCs included low levels of awareness among AYCs, a low willingness to participate in study activities, uncertainty about the prevalence of AYCs, a limited school capacity to support the recruitment; COVID-19 spreading in 2020-2021 and related restrictions. Based on this experience, recommendations are put forward for how to better engage AYCs in research.

Indexed as

CaregiversCOVID-19AdolescentChildEuropeFamilyHumansPsychosocial Support Systemsadolescent young carerscluster-randomised controlled trialco-designCOVID-19intervention studypsychosocial supportrecruitmentyoung carers

Identifiers

PMID36981983
PMCPMC10049644
OpenAlexW4324148725

What OpenQuestion holds

Textfull text, public
LicenceCC BY
measurements read20
identifiers read1
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.