ReviewChildren (Basel, Switzerland)2023
Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review.
Review in Children (Basel, Switzerland), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it, 18 citations in OpenAlex.
- Effectiveness of eHealth Interventions for Adolescents and Young Adults With Congenital Heart Disease: Systematic Review.Journal of medical Internet research · 2026Pooled it
- Aorto-Left Ventricular Tunnel: The First Systematic Review of An Uncommon Entity (177 Worldwide Cases from 1965 to 2024).Reviews in cardiovascular medicine · 2025Pooled it
- Feasibility of Repeated Patient-Reported Outcome Collection and Trial Design Implications for Structured Transition Care in Adolescents with Congenital Heart Disease: A Single-Center Pilot Randomized Controlled Study.Children (Basel, Switzerland) · 2026Article
- Bridging the gap: recommendations to accomplish transition from pediatric to adult care in adolescents living with obesity.Reviews in endocrine & metabolic disorders · 2026Review
- Emergency and Non-Referral Admissions as Predictors of Hospital Mortality Among Adults with Congenital Heart Diseases: A Nationwide Claim-Based Registry Study in Japan.Healthcare (Basel, Switzerland) · 2026Article
- Transition from Paediatric to Adult Care in Congenital Heart Disease: A Call for Action.Journal of clinical medicine · 2025Review
- Virtual Peer Mentoring for Adolescents With Congenital Heart Disease: A Mixed-Methods Study of the iPeer2Peer Program in the Transition to Adult Care.CJC pediatric and congenital heart disease · 2025Article
- Transitional Care for Adult Patients with Congenital Heart Disease.Internal medicine (Tokyo, Japan) · 2025Review
- Transition Readiness in Pediatric Chronic Digestive Diseases: A Regional Perspective from North-Eastern Romania.Medicina (Kaunas, Lithuania) · 2024Article
- Health Equity and Policy Considerations for Pediatric and Adult Congenital Heart Disease Care among Minoritized Populations in the United States.Journal of cardiovascular development and disease · 2024Review
- Review
- Psychosocial Contradictions in the Transition to Adulthood for Patients with Congenital Heart Disease - A Qualitative Study.Iranian journal of nursing and midwifery researchArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The majority of patients born with congenital heart disease (CHD) need lifelong surveillance with serial clinical attendance and examinations. However, loss of follow-up (namely no documented follow-up for 3 years or more) is a recognised common problem since it is often related to remarkable worsening in the health of CHD patients with increased morbidity and mortality. Transitioning from paediatric to adult care has proven to be the most vulnerable point in the care of these subjects. As such, a systematic review was carried out to ask the following questions: What is the percentage of loss of follow-up worldwide? Are there regional fluctuations in the percentage? Is there a link between loss of follow-up and the complexity of CHD? What strategies should be employed to lower the risk of discontinuity in care? The most recent worldwide averaged loss of follow-up is 26.1%, with significant fluctuations across continents and countries. This percentage is even higher (31.9%) when one includes all untraceable patients, presuming that they are not having any cardiac follow-up. The highest discontinuity of care was reported in the USA and in patients with simple CHD. Planning the rules of transition seems to be one of the most reliable tools to minimise the number of CHD patients who are lost in transition. Recalling patients, with general practitioners who are crucial in readdressing half of the lost to follow-up CHD patients to adult CHD specialists, and a good relationship between paediatric cardiologists and the adult CHD team are two other valuable strategies in aiding successful transition.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.