ArticlePalliative medicine2023
Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study.
Article in Palliative medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07102433 (CHESS - Complexity and Outcomes in Health, Education, and Social Support Among Children and Young People With Life-limiting Conditions), which is not on this map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
CHESS - Complexity and Outcomes in Health, Education, and Social Support Among Children and Young People With Life-limiting Conditions: Establishing a Multisectoral Collaboration and Conceptual Framework to Advance Evidence and Practice.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A Dutch clinical practice guideline for paediatric palliative care: a systematic review and recommendations on psychosocial care including preloss and bereavement care.BMC palliative care · 2025Guideline
- Nurses' Experiences with Spiritual Care in Paediatric Palliative Care: A Systematic Review.Healthcare (Basel, Switzerland) · 2026Review
- Current situation, challenges and future trends of pediatric palliative care from a multi-dimensional perspective: a narrative review.Translational pediatrics · 2026Review
- What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents.The patient · 2025Article
- What are the greatest opportunities for innovation to improve access to and quality of palliative care services to children? A qualitative interview study.BMC palliative care · 2025Article
- Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care.Palliative medicine · 2025Article
- Existential Reflections Expressed by Patients in Need of Hospital Care: A Qualitative Study.Scandinavian journal of caring sciences · 2025Article
- A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation study.Health and quality of life outcomes · 2025Article
- Cognitive testing of the Children's Palliative Outcome Scale (C-POS) with children, young people and their parents/carers.Palliative medicine · 2024Article
- Article
- 'My life is a mess but I cope': An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition.Palliative medicine · 2024Article
- Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study.BMC palliative care · 2024Article
- Development of a child and family centred outcome measure for children and young people with life-limiting and life-threatening conditions: progress to date on the Children's Palliative Care Outcome Scale (C-POS:UK).Palliative care and social practice · 2024Article
- Focusing on life rather than illness: the lived experience of children with life-threatening and life-limiting conditions-a qualitative study.Palliative care and social practice · 2024Article
- "It was definitely for a purpose that I was born this way": Lived experiences of adolescents with chronic illness.Health psychology openArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
Abstract
backgroundDespite being a core domain of palliative care, primary data on spiritual and existential concerns has rarely been collected among children with life-limiting and life-threatening conditions and their families. Existing evidence has tended to focus on the religious aspects among children with cancer.
aimTo identify the spiritual needs of children with life-limiting and life-threatening conditions.
designCross-sectional semi-structured, qualitative interview study with children, families and health and social care professionals. Verbatim transcripts were analysed using Framework analysis. SETTING/
participantsPurposively sampled children with life-limiting and life-threatening conditions, their parents and siblings, health and social care professionals recruited from six hospitals and three children's hospices in the UK, and commissioners of paediatric palliative care services recruited through networks and a national charity.
resultsOne hundred six participants were interviewed: 26 children (5-17 years), 53 family members (parents/carers of children 0-17 years and siblings (5-17 years)), 27 professionals (health and social care professionals and commissioners of paediatric palliative care). Themes included: living life to the fullest, meaning of life and leaving a legacy, uncertainty about the future, determination to survive, accepting or fighting the future and role of religion. Children as young as 5 years old identified needs or concerns in the spiritual domain of care.
conclusionsAddressing spiritual concerns is essential to providing child- and family-centred palliative care. Eliciting spiritual concerns may enable health and social care professionals to identify the things that can support and enhance a meaningful life and legacy for children and their families.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.