ArticleBMJ global health2023
What constitutes equitable data sharing in global health research? A scoping review of the literature on low-income and middle-income country stakeholders' perspectives.
Article in BMJ global health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 4 of them syntheses that pooled it.
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Who cites it
36 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Exploring Translational Medical Research Progress in G20 Countries:Saudi medical journal · 2026Pooled it
- Challenges and Opportunities for Data Sharing Related to Artificial Intelligence Tools in Health Care in Low- and Middle-Income Countries: Systematic Review and Case Study From Thailand.Journal of medical Internet research · 2025Pooled it
- The lymphatic filariasis treatment study landscape: A systematic review of study characteristics and the case for an individual participant data platform.PLoS neglected tropical diseases · 2024Pooled it
- Prevalence of systemic antibacterial use during pregnancy worldwide: A systematic review.PloS one · 2024Pooled it
- Ethical Governance of Open Data Across Biomedical Research, Healthcare, and Public Health: Privacy, Equity, Trust, and Controlled Access.Health care analysis : HCA : journal of health philosophy and policy · 2026Article
- From Data Poverty to Data Sovereignty: Operationalizing Gold-Standard Biomedical Datasets in Low- and Middle-Income Countries.JMIR medical informatics · 2026Article
- Patient Perceptions and Acceptance of Blockchain-Based Health Data Sharing in Oncology: Cross-Sectional Survey.JMIR formative research · 2026Article
- The data transparency crisis in research: Lessons from systematic reviews and meta-analyses.PLoS medicine · 2026Article
- Genomic sovereignty for health equity in Latin America and the Caribbean.Lancet regional health. Americas · 2026Article
- Citation and policy influence of research using demographic and health survey data: a bibliometric analysis.Health research policy and systems · 2026Article
- Factors affecting the collection of clinical data for quality improvement at a tertiary centre in Papua New Guinea: a qualitative study.Journal of global health · 2026Article
- Global approaches to infectious disease surveillance and modeling.Nature medicine · 2026Review
- How do global health research actors conceptualise inclusion in response to decolonisation calls? A scoping review.BMJ global health · 2026Article
- How do global health research actors conceptualise inclusion in response to decolonisation calls? A scoping review.BMJ global health · 2026Article
- Collective action for responsible global health data sharing and use.BMJ global health · 2026Review
- Autism data sharing: Benefits, challenges, and recommendations.PLOS digital health · 2026Review
- Identifying the motivators, benefits and barriers to sharing participant-level data and samples: results from an international online survey of acute febrile illness cohort teams.BMC medical ethics · 2026Article
- Mapping Non-Monetary Values in Data Sharing: Development and Validation of an SSH Framework Across Sectors.Open research Europe · 2026Article
- Metagenomic next-generation sequencing: new horizons in microbiology.Frontiers in cellular and infection microbiology · 2026Review
- Global Surgery as an emerging discipline: Why it thrives despite barriers-And what must happen next.PLOS global public health · 2026Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
introductionDespite growing consensus on the need for equitable data sharing, there has been very limited discussion about what this should entail in practice. As a matter of procedural fairness and epistemic justice, the perspectives of low-income and middle-income country (LMIC) stakeholders must inform concepts of equitable health research data sharing. This paper investigates published perspectives in relation to how equitable data sharing in global health research should be understood.
methodsWe undertook a scoping review (2015 onwards) of the literature on LMIC stakeholders' experiences and perspectives of data sharing in global health research and thematically analysed the 26 articles included in the review.
resultsWe report LMIC stakeholders' published views on how current data sharing mandates may exacerbate inequities, what structural changes are required in order to create an environment conducive to equitable data sharing and what should comprise equitable data sharing in global health research.
conclusionsIn light of our findings, we conclude that data sharing under existing mandates to share data (with minimal restrictions) risks perpetuating a neocolonial dynamic. To achieve equitable data sharing, adopting best practices in data sharing is necessary but insufficient. Structural inequalities in global health research must also be addressed. It is thus imperative that the structural changes needed to ensure equitable data sharing are incorporated into the broader dialogue on global health research.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.