Evidence map›Paper›PMID 36972857›Full record

ArticleJournal of pain and symptom management2023

Building a Cardiac Palliative Care Program: A Qualitative Study of the Experiences of Ten Program Leaders From Across the United States.

Moritz Blum, Amy Beasley, Dara Ikejiani, Nathan E Goldstein, Marie A Bakitas, Dio Kavalieratos, Laura P Gelfman

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Moritz BlumBrookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai (M.B., N.E.G., L.P.G.), New York, New York, USA.
Amy BeasleySchool of Nursing and Department of Medicine, Division of Geriatrics, Gerontology, and Palliative Care (A.B., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA.
Dara IkejianiSection of Palliative Care and Medical Ethics, Division of General Internal Medicine (D.I., D.K.), University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Nathan E GoldsteinBrookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai (M.B., N.E.G., L.P.G.), New York, New York, USA.
Marie A BakitasSchool of Nursing and Department of Medicine, Division of Geriatrics, Gerontology, and Palliative Care (A.B., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA; Division of Palliative Medicine, Department of Family and Preventive Medicine (D.K.), Emory University, Atlanta, Georgia, USA.
Dio KavalieratosSection of Palliative Care and Medical Ethics, Division of General Internal Medicine (D.I., D.K.), University of Pittsburgh, Pittsburgh, Pennsylvania, USA; Division of Palliative Medicine, Department of Family and Preventive Medicine (D.K.), Emory University, Atlanta, Georgia, USA.
Laura P GelfmanBrookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai (M.B., N.E.G., L.P.G.), New York, New York, USA; James J. Peters Veterans Affairs Medical Center, Geriatric Research Education and Clinical Center (GRECC) (L.P.G.), Bronx, New York, USA. Electronic address: laura.gelfman@mssm.edu.

Funding

Residing in the Community with Dementia at the End of Life: Understanding Hospice Use and Residential SettingP30AG028741 · NIA · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI MELISSA Diane ALDRIDGE, R. Sean Morrison · 2010 to 2026
$21.9M
Goals of Care Discussions in Older Adults with Heart Failure and Their CaregiversK23AG049930 · NIA · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI GELFMAN, LAURA PILAR · 2016 to 2022
$816k
INTEGRATING PALLIATIVE CARE WITH DISEASE MANAGEMENT TO IMPROVE OUTCOMES AMONG PATIENTS WITH ADVANCED HEART FAILURE: INTERVENTIONAL RESEARCH CAREER DEVELOPMENTK01HL133466 · NHLBI · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI KAVALIERATOS, DIONYSIOS · 2016 to 2019
$527k
NHLBI NIH HHS K01 HL133466NIA NIH HHS K23 AG049930NIA NIH HHS P30 AG028741
6 · The paper itself

Abstract

contextPalliative care is guideline-recommended for patients with advanced heart failure (HF). However, studies on how cardiac palliative care is provided in the United States are lacking.

objectivesTo study how cardiac palliative care programs provide services, and to identify challenges and facilitators they encountered in program development.

methodsIn this qualitative descriptive study, we used purposive and snowball sampling approaches to identify cardiac palliative care program leaders across the United States, administered a survey and conducted semi-structured interviews. Interview transcripts were coded and evaluated using thematic analysis.

resultsWhile cardiac palliative care programs vary in their organizational setup, they all provide comprehensive interdisciplinary palliative care services, ideally across the care continuum. They predominantly serve HF patients who are evaluated for advanced therapies or have complex needs. The challenges which cardiac palliative care programs face include reaching those cardiac patients who need palliative care the most and collaborating with cardiologists who do not see value added from palliative care for their patients. Facilitators of cardiac palliative care program development include building personal relationships with cardiology providers, proactively assessing local institution needs, and tailoring palliative care services to meet patient and provider needs.

conclusionCardiac palliative care programs vary in their organizational setup but provide similar services and face similar challenges. The challenges and facilitators we identified can inform the development of future cardiac palliative care programs.

Indexed as

Heart FailureHospice and Palliative Care NursingHumansPalliative CareProgram DevelopmentQualitative ResearchUnited Statescardiac palliative carechallengesfacilitatorsheart failurePalliative care

Identifiers

PMID36972857
PMCPMC10330149

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.