Evidence map›Paper›PMID 36969147›Full record

ArticleJournal of intellectual & developmental disability2023

Clinician-reported barriers to providing perinatal care to women with intellectual and developmental disabilities.

Lauren D Smith, Anne Valentine, Tiffany A Moore Simas, Susan L Parish, Alanna Levy, Monika Mitra

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of intellectual & developmental disability, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lauren D SmithLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, MA, USA.
Anne ValentineLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, MA, USA.
Tiffany A Moore SimasDepartment of Obstetrics and Gynecology, University of Massachusetts Medical School, UMass Memorial Medical Center, Worcester , MA, USA.
Susan L ParishCollege of Health Professions, Virginia Commonwealth University, Richmond, VA, USA.
Alanna LevyLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, MA, USA.
Monika MitraLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, MA, USA.

Funding

Pregnancy experiences of women with IDD: Family caregiver perspectivesR01HD082105 · NICHD · UNIV OF MASSACHUSETTS MED SCH WORCESTER · PI MITRA, MONIKA, PARISH, SUSAN L. · 2015 to 2019
$2.8M
NICHD NIH HHS R01 HD082105
6 · The paper itself

Abstract

Background: Research suggests that women with intellectual and developmental disabilities are at increased risk for adverse pregnancy outcomes. Further, they report unmet perinatal care needs. This qualitative study examined clinician perspectives on barriers to providing perinatal care to women with intellectual and developmental disabilities. Method: We conducted semi-structured interviews and one focus group with US obstetric care clinicians (n=17). We used a content analysis approach to code data and analyse them for larger themes and relationships. Results: The majority of participants were white, non-Hispanic, and female. Participants reported barriers providing care to pregnant women with intellectual and developmental disabilities across individual (e.g., communication challenges), practice (e.g., identification of disability status), and system levels (e.g., lack of clinician training). Conclusions: Clinician training and evidence-based guidelines for perinatal care of women with intellectual and developmental disabilities as well as services and supports during pregnancy are needed.

Indexed as

Intellectual DisabilityPerinatal CareChildDevelopmental DisabilitiesFemaleFocus GroupsHumansInfant, NewbornPregnancyPregnancy OutcomeQualitative Researchintellectual disabilityobstetricsperinatal carepregnancy

Identifiers

PMID36969147
PMCPMC10036077

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.