Evidence map›Paper›PMID 36968635›Full record

ArticleRheumatology advances in practice2023

How to self-examine for tender and swollen joints: co-producing a training video for people with rheumatoid arthritis.

Charlotte A Sharp, Karen Staniland, Julie Gandrup, Trish Cornell, William G Dixon

Abstract read
In one paragraph

Article in Rheumatology advances in practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Charlotte A SharpCentre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0003-4051-2281
Karen StanilandCentre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, UK.
Julie GandrupCentre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, UK.
Trish CornellRheumatology, Poole Hospital, Poole, UK.
William G DixonCentre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0001-5881-4857

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: This paper describes the co-production of a training video to support people with RA to self-examine for tender and swollen joints. Methods: The patient and public involvement and engagement (PPIE) group supporting a remote monitoring study elected to develop a video to train people with RA how to self-examine for tender and swollen joints, because nothing appropriate was publicly available to fulfil their needs. A core team of PPIE group members and clinicians developed the video, with input from conception to dissemination from the PPIE group. The video was posted, open access, on a YouTube website in February 2021, alongside supporting materials. The number of monthly hits was tracked and a survey developed to ascertain feedback. Results: The video received 1000 hits in the first week, and >40 000 at 10 months. The top three countries viewing the video were India, the USA and the UK, with a range of ages and gender profile broadly corresponding to those of RA patients. Forty-eight survey responses were received (26 patients and 22 clinicians). Patients reported an improvement in their ability to self-examine after watching this video. Eighty-six per cent of patients and 71% of clinicians would recommend the video. It has been used and disseminated by a number of national organizations within the UK. Conclusion: This co-produced, open-access training video for people with RA, originally intended to support a research study into remote monitoring, has been well received, reflecting an international interest in self-examination.

Indexed as

co-developmentpatient and public involvementpatient educationRAtraining

Identifiers

PMID36968635
PMCPMC10036989

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.