Evidence map›Paper›PMID 36952509›Full record

ArticlePloS one2023

Italian cross-cultural adaptation of the Quality of Communication questionnaire and the 4-item advance care planning engagement questionnaire.

Ludovica De Panfilis, Simone Veronese, Marta Perin, Marta Cascioli, Mariangela Farinotti, Paola Kruger, Roberta M Zagarella, J R Curtis, Rebecca L Sudore, Elizabeth L Nielsen and 4 more

Open access · goldFull text read
In one paragraph

Article in PloS one, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
3.2field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 11 citations in OpenAlex.

  1. Trial
  2. Assessing validity and reliability of the Benefit Finding Scale in Italian people with multiple sclerosis and their caregivers.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 7 institutions in 2 countries.

Ludovica De PanfilisBioethics Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.ORCID 0000-0002-5509-7626
Simone VeroneseFondazione FARO, Turin, Italy.ORCID 0000-0002-9555-7252
Marta PerinBioethics Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.
Marta CascioliHospice 'La Torre sul Colle', Azienda USL Umbria 2, Spoleto, Italy.
Mariangela FarinottiUnit of Neuroepidemiology, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.
Paola KrugerEUPATI Fellow (European Patients Academy for Therapeutic Innovation) Italy, Rome, Italy.
Roberta M ZagarellaBioethics Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.ORCID 0000-0001-8012-2451
J R CurtisCambia Palliative Care Center of Excellence at UW Medicine, University of Washington, Seattle, Washington, United States of America.ORCID 0000-0001-9529-845X
Rebecca L SudoreDivision of Geriatrics, School of Medicine, University of California San Francisco, San Francisco, San Francisco, California, United States of America.
Elizabeth L NielsenCambia Palliative Care Center of Excellence at UW Medicine, University of Washington, Seattle, Washington, United States of America.
Ruth A EngelbergCambia Palliative Care Center of Excellence at UW Medicine, University of Washington, Seattle, Washington, United States of America.
Andrea GiordanoUnit of Neuroepidemiology, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.ORCID 0000-0003-4466-9788
Alessandra SolariUnit of Neuroepidemiology, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.ORCID 0000-0001-9930-7579
ConCure-SM project
Fondazione IRCCS Istituto Neurologico Carlo Besta · ITUniversity of Washington · USAzienda Sanitaria Unità Locale di Reggio Emilia · ITInnova (Italy) · ITOspedale di Spoleto · ITUniversity of California, San Francisco · USUniversity of Modena and Reggio Emilia · IT

Funding

Mentoring Researchers in Advance Care Planning for Underrepresented Older Adults at Risk for Alzheimer’s Disease and Related Dementias and Their CaregiversK24AG054415 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI REBECCA L SUDORE · 2017 to 2026
$1.7M
NIA NIH HHS K24 AG054415
6 · The paper itself

Abstract

backgroundAdvance care planning (ACP) is influenced by several factors (e.g., patient's readiness to engage, clinician's skills, and the cultural environment). Availability of reliable and valid self-reported measures of the ACP domains is crucial, including cross-cultural equivalence.

aimTo culturally adapt into Italian the 19-item Quality of Communication (QOC) and the 4-item ACP Engagement (4-item ACP-E) questionnaires.

methodsWe translated and culturally adapted the two questionnaires and produced a significant other (SO) version of the QOC (QOC-SO). Each questionnaire was field tested via cognitive interviews with users: nine patients (QOC, 4-item ACP-E) and three SOs (QOC-SO) enrolled at three palliative care services.

resultsWe made minor changes to 5/19 QOC items, to improve clarity and internal consistency; we changed the response option 'didn't do' into 'not applicable'. Finally, we slightly revised the QOC to adapt it to the paper/electronic format. QOC debriefing revealed that the section on end of life was emotionally challenging for both patients and SOs. We simplified the 4-item ACP-E layout, added a sentence in the introduction, and revised the wording of one item, to improve coherence with the Italian ACP legislation. ACP-E debriefing did not reveal any major issue.

conclusionsResults were satisfactory in terms of semantic, conceptual and normative equivalence of both questionnaires. Acceptability was satisfactory for the 4-item ACP-E, while findings of the QOC cognitive debriefing informed a major amendment of a pilot trial protocol on ACP in multiple sclerosis (ConCure-SM): use of the interviewer version only, in an adaptive form. Psychometric testing of both questionnaires on a large, independent sample will follow.

Indexed as

Advance Care PlanningCross-Cultural ComparisonCommunicationHumansItalyPsychometricsSurveys and Questionnaires

Identifiers

PMID36952509
PMCPMC10035811
OpenAlexW4360608973

What OpenQuestion holds

Textfull text, public
LicenceCC BY
measurements read28
identifiers read4
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.