Evidence map›Paper›PMID 36950037›Full record

ArticleLancet regional health. Americas2023

Victims of eugenic sterilisation in Utah: cohort demographics and estimate of living survivors.

James Tabery, Nicole L Novak, Lida Sarafraz, Aubrey Mansfield

Open access · goldFull text read
In one paragraph

Article in Lancet regional health. Americas, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.5field-weighted citation impact, top 30% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 2 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

James TaberyDepartment of Philosophy, University of Utah, USA.
Nicole L NovakDepartment of Community and Behavioral Health and Public Policy Center, University of Iowa, USA.
Lida SarafrazDepartment of Philosophy, University of Utah, USA.
Aubrey MansfieldCollege of Health, University of Utah, USA.
University of Utah · USUniversity of Iowa · US

Funding

Utah Center of Excellence in ELSI Research: UCEERRM1HG009037 · NHGRI · UNIVERSITY OF UTAH · PI ROTHWELL, ERIN, TABERY, JAMES · 2016 to 2024
$8.0M
Demographic Patterns of Eugenic Sterilization: Mixed Methods Investigation of Reproductive Control of the 'Unfit' - Michigan Sterilization Data SupplementR01HG010567 · NHGRI · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI NOVAK, NICOLE LOUISE, STERN, ALEXANDRA M · 2018 to 2023
$2.8M
GURU: Graduate and Undergraduate Researchers of UCEERR25HG010020 · NHGRI · UNIVERSITY OF UTAH · PI KILBRIDE, MADISON K, TABERY, JAMES · 2018 to 2023
$751k
NHGRI NIH HHS R01 HG010567NHGRI NIH HHS R25 HG010020NHGRI NIH HHS RM1 HG009037
6 · The paper itself

Abstract

Background: Eugenicists at the beginning of the twentieth century feared that the "unfit" were outbreeding the "fit" and promoted interventions like sterilisation as a solution to the perceived problem. Over 60,000 people were sterilised across the United States, victims of eugenic programs implemented in 32 states. Utah had a particularly aggressive eugenic sterilisation program, hailed by eugenicists for sterilising such a large proportion of its population, and lasting well into the 1970s. The goal of the present study was to determine who, at the demographic level, was targeted by this eugenic practice in Utah, and to also estimate how many survivors of the program might still be alive in 2023. Methods: We used archival records and data abstracted from charts at the Utah State Developmental Center to construct an observational cohort of people sterilised under Utah's coercive, eugenic sterilisation program. We described the demographics of the cohort and presented a life table analysis to estimate the number of survivors still living in 2023. Findings: At least 830 men, women, and children (modal age of 15-19, 53.6% female) were sterilised in Utah institutions under a program that was launched in 1925, peaked in the 1940s, and concluded in the 1970s. The life table analysis predicts approximately 54 survivors (36 women, 18 men), with an average age of 78. Interpretation: Many people sterilised under Utah's eugenics law are likely living today. While some states have taken steps to reckon with their roles in depriving people of their reproductive rights, Utah lacks even an official acknowledgment of this shameful, medical history. Given the advanced age of the potential survivors, time is running out for a reconciliation that can be experienced by those who were most harmed by the practice. Funding: This research was supported by three grants from the National Human Genome Research Institute at the U.S. National Institutes of Health (RM1HG009037, R25HG010020, R01HG010567).

Indexed as

DisabilityEugenicsGeneticsHealth lawMedical ethicsReproductive justiceSterilisation

Identifiers

PMID36950037
PMCPMC10025421
OpenAlexW4320923036

What OpenQuestion holds

Textfull text, public
LicenceCC BY
reference markers read1
measurements read44
identifiers read2
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.