Evidence map›Paper›PMID 36949805›Full record

ArticleMovement disorders clinical practice2023

Development and Psychometric Properties of a New Brief, Yet Comprehensive, Behavioral Questionnaire for Huntington's Disease.

Shelby Hughes, Sameer Aboufadel, Anna Smirnova, Chase Snell, Emma Churchill, Andrew Hall, Vanessa Malcarne, Paul E Gilbert, Jody Corey-Bloom

Open access · hybridAbstract read
In one paragraph

Article in Movement disorders clinical practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.4field-weighted citation impact, top 44% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 1 country.

Shelby HughesDepartment of Neurosciences University of California, San Diego La Jolla California USA.ORCID https://orcid.org/0000-0002-4351-842X
Sameer AboufadelDepartment of Neurosciences University of California, San Diego La Jolla California USA.
Anna SmirnovaDepartment of Neurosciences University of California, San Diego La Jolla California USA.
Chase SnellDepartment of Neurosciences University of California, San Diego La Jolla California USA.
Emma ChurchillDepartment of Neurosciences University of California, San Diego La Jolla California USA.
Andrew HallDepartment of Neurosciences University of California, San Diego La Jolla California USA.
Vanessa MalcarneSan Diego State University/University of California, San Diego Joint Doctoral Program in Clinical Psychology San Diego California USA.
Paul E GilbertSan Diego State University/University of California, San Diego Joint Doctoral Program in Clinical Psychology San Diego California USA.
Jody Corey-BloomDepartment of Neurosciences University of California, San Diego La Jolla California USA.
San Diego State University · USUniversity of California San Diego · US

Funding

VIRUS-INDUCED BRAIN PATHOLOGYP50AG005131 · NIA · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI BREWER, JAMES B · 1985 to 2018
$55.4M
NIA NIH HHS P50 AG005131
6 · The paper itself

Abstract

Background: Individuals with Huntington's disease (HD) experience motoric, cognitive, and psychiatric dysfunction. These difficulties can cause maladaptive behaviors that can be very distressing to family and caregivers. Capturing these behaviors in clinical and research settings is crucial. Objectives: To develop and evaluate the psychometric properties of an instrument that is brief, yet comprehensive, in assessing a broad range of behaviors in HD. Methods: A pool of 30 items encompassing common behaviors in HD was generated. Items were scored on a 4-point Likert scale ranging from completely disagree to completely agree, with higher scores indicating greater dysfunction. The self-report measure was piloted on a small sample of individuals with HD. Reliability (test-retest, internal consistency) and validity (convergent, discriminant, criterion) were evaluated. Results: The HD-Behavioral Questionnaire (HD-BQ) demonstrated evidence for reliability with a test-retest correlation coefficient of Conclusions: The HD-BQ, a patient self-report measure, was created to more fully explore behavioral issues that people with HD experience in response to limitations of commonly used instruments in the field. Psychometric evidence supports that the HD-BQ is a valid and reliable instrument for the brief, yet comprehensive, assessment of problematic behaviors in HD.

Indexed as

behaviorHuntington's diseasepsychometricsreliabilityvalidity

Identifiers

PMID36949805
PMCPMC10026282
OpenAlexW4316362996

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.