Evidence map›Paper›PMID 36945123›Full record

ArticlePediatric blood & cancer2023

Children's Oncology Group KidsCare smartphone application for parents of children with cancer.

Wendy Landier, Paula D Campos Gonzalez, Harrison Henneberg, Jocelyn M York, Aman Wadhwa, Kandice Adams, Avi Madan-Swain, Julie Anna Wolfson, Beth Benton, Cindi Seidel and 7 more

Abstract read
In one paragraph

Article in Pediatric blood & cancer, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Development and pre-testing of a family-centered digital intervention to help families know what to EXPECT from pediatric acute lymphoblastic leukemia therapy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Wendy LandierUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.ORCID 0000-0003-3319-5652
Paula D Campos GonzalezUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.ORCID 0000-0002-0613-8268
Harrison HennebergUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.
Jocelyn M YorkUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.
Aman WadhwaUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.
Kandice AdamsUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.
Avi Madan-SwainUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.
Julie Anna WolfsonUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.
Beth BentonChildren's of Alabama, Birmingham, Alabama, USA.
Cindi SeidelChildren's of Alabama, Birmingham, Alabama, USA.
Valencia SlaterChildren's of Alabama, Birmingham, Alabama, USA.
Kim SnuggsChildren's of Alabama, Birmingham, Alabama, USA.
Amy FolsomChildren's of Alabama, Birmingham, Alabama, USA.
Jeneane MillerChildren's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Kathryn TomlinsonChildren's Hospital of Wisconsin, Milwaukee, Wisconsin, USA.
Susan ZupanecHospital for Sick Children, Toronto, Ontario, Canada.
Smita BhatiaUniversity of Alabama at Birmingham, Birmingham, Alabama, USA.

Funding

NCTN BIQSFP ANBL1531 (NRT)U10CA180886 · NCI · PUBLIC HEALTH INSTITUTE · PI Douglas S. Hawkins · 2014 to 2026
$390.6M
NCI NIH HHS U10 CA180886
6 · The paper itself

Abstract

backgroundParents of children with cancer must learn and retain crucial information necessary to provide safe care for their child. Smartphone applications (apps) provide a significant opportunity to meet the informational needs of these parents. We aimed to develop, refine, and evaluate a smartphone app, informed by the Children's Oncology Group (COG) expert consensus recommendations, to support the informational needs of parents of children with cancer. PROCEDURE: We employed a user-centered iterative mixed-methods approach in two phases (prototype development/refinement and pilot testing). We engaged parents and clinicians in evaluating the app via qualitative interviews and standardized tools that measured app quality (Mobile Application Rating Scale [MARS]), usability (System Usability Scale [SUS]), and acceptability (System Acceptability Scale [SAS]). We evaluated early usage patterns after public release.

resultsThirty-two parents and 17 clinicians participated. Mean (± standard deviation [SD]) scores for app quality, usability, and acceptability were: MARS: 4.5 ± 0.7 on a 5-point scale; SUS: 86.7 ± 23.8 on a 100-point scale; and SAS: superior (61%); similar (28%); inferior (11%) to written materials. Qualitative findings largely confirmed the quantitative data. Downloads of the app during the first year following public release have exceeded 5000.

conclusionsThe COG KidsCare app prototype was found to be of high quality and received high usability and acceptability ratings. Further testing is needed to determine app effectiveness in improving parental knowledge regarding care of children with cancer.

Indexed as

Mobile ApplicationsNeoplasmsChildConsensusHumansParentsSmartphonemHealthpatient-family educationpediatric oncology

Identifiers

PMID36945123
PMCPMC10631815

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.