Evidence map›Paper›PMID 36944091›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2023

Integrating patient voices into the extraction of social determinants of health from clinical notes: ethical considerations and recommendations.

Andrea L Hartzler, Serena Jinchen Xie, Patrick Wedgeworth, Carolin Spice, Kevin Lybarger, Brian R Wood, Herbert C Duber, Gary Hsieh, Angad P Singh, SDoH Community Champion Advisory Board

Abstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Safeguarding Social Determinants of Health Data at a Managed Health Plan.Advances in health information science and practice · 2026
    Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Advancements in extracting social determinants of health information from narrative text.Journal of the American Medical Informatics Association : JAMIA · 2023
    Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Andrea L HartzlerBiomedical Informatics and Medical Education, University of Washington, Seattle, Washington, USA.ORCID 0000-0003-4932-7314
Serena Jinchen XieBiomedical Informatics and Medical Education, University of Washington, Seattle, Washington, USA.
Patrick WedgeworthBiomedical Informatics and Medical Education, University of Washington, Seattle, Washington, USA.
Carolin SpiceBiomedical Informatics and Medical Education, University of Washington, Seattle, Washington, USA.
Kevin LybargerDepartment of Information Sciences and Technology, George Mason University, Fairfax, Virginia, USA.ORCID 0000-0001-5798-2664
Brian R WoodDepartment of Medicine, University of Washington, Seattle, Washington, USA.
Herbert C DuberDepartment of Health, Washington State, Olympia, Washington, USA.
Gary HsiehHuman Centered Design and Engineering, University of Washington, Seattle, Washington, USA.
Angad P SinghBiomedical Informatics and Medical Education, University of Washington, Seattle, Washington, USA.
SDoH Community Champion Advisory Board

Funding

University of Washington Biomedical Informatics and Data Science Research Training ProgramT15LM007442 · NLM · UNIVERSITY OF WASHINGTON · PI JOHN H. GENNARI, Andrea L. Hartzler · 2002 to 2026
$19.6M
NLM NIH HHS T15 LM007442
6 · The paper itself

Abstract

Identifying patients' social needs is a first critical step to address social determinants of health (SDoH)-the conditions in which people live, learn, work, and play that affect health. Addressing SDoH can improve health outcomes, population health, and health equity. Emerging SDoH reporting requirements call for health systems to implement efficient ways to identify and act on patients' social needs. Automatic extraction of SDoH from clinical notes within the electronic health record through natural language processing offers a promising approach. However, such automated SDoH systems could have unintended consequences for patients, related to stigma, privacy, confidentiality, and mistrust. Using Floridi et al's "AI4People" framework, we describe ethical considerations for system design and implementation that call attention to patient autonomy, beneficence, nonmaleficence, justice, and explicability. Based on our engagement of clinical and community champions in health equity work at University of Washington Medicine, we offer recommendations for integrating patient voices and needs into automated SDoH systems.

Indexed as

Health EquitySocial Determinants of HealthConfidentialityHumansbioethical issueselectronic health recordsnatural language processingpatient acceptance of health caresocial determinants of health

Identifiers

PMID36944091
PMCPMC10354781

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.