ArticleAutism in adulthood2023
Health Care Needs, Experiences, and Perspectives of Autistic Adults.
Article in Autism in adulthood, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- The Autistic Parenting Journey: A Systematic Review of Qualitative Evidence and Thematic Meta-Synthesis.Autism in adulthood · 2026Article
- Nursing Perspectives on Factors That Influence Provision of Patient-Centered Care for Autistic Patients in a Large Urban Hospital System: A Qualitative Study.Journal of advanced nursing · 2026Article
- Health experiences and outcomes of autistic and non-autistic adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder.BMC medicine · 2026Article
- The Power of ECHO Autism: Improving Confidence and Holistic Care for Autistic Adults.Journal of intellectual disability research : JIDR · 2026Article
- Atypical Visually Guided Precision Grip Control in Middle-Aged and Older Autistic Adults.Autism research : official journal of the International Society for Autism Research · 2026Article
- Advancing Healthcare Provision to Autistic Clients: A Systematic Review of Autism Focused Digitally Delivered Professional Education Programs (DDPE) for the Health Workforce.Journal of autism and developmental disorders · 2026Article
- The healthcare experiences of middle and older age autistic women in the United Kingdom.Autism : the international journal of research and practice · 2026Article
- Neurodiversity as an epistemic stress test for psychotherapy and health care: a neuroaffirmative conceptual analysis of relational-proximity priors in clinical, institutional, and AI-supported models.Frontiers in psychiatry · 2026Review
- Interpretable machine learning for predicting moderate-to-severe insomnia risk in Chinese adults with autism spectrum disorder.Frontiers in psychiatry · 2026Article
- Patient-centered burdens and economic outcomes among patients who are veterans, people with intellectual and developmental disabilities, and people living in rural areas and their caregivers: a scoping review.Frontiers in public health · 2026Article
- Experiences and perceptions of physical healthcare among adult autistic patients: A scoping review.International journal of nursing studies advances · 2025Review
- Optimising general practice support for autistic adults: a realist review protocol.Systematic reviews · 2025Article
- Consensus on high-priority outcomes to be used in the evaluation of services for autistic adults: Results from a "CBPR-Nested Delphi Process".Autism : the international journal of research and practice · 2025Article
- Acute Medical Events in Adults with Profound Autism: A Review and Illustrative Case Series.Brain sciences · 2025Article
- Repeated use of hospital-based services and delayed hospital discharges in a population-based cohort of autistic adults in Canada.Autism : the international journal of research and practice · 2025Article
- Barriers and facilitators to primary healthcare encounters as reported by autistic adults: a qualitative study.Frontiers in medicine · 2025Article
- The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case study.International journal of qualitative studies on health and well-being · 2024Article
- The Autism Constellation and Neurodiversity: Long-Term and Adult Outcomes in Autism Spectrum Disorder.Pediatric clinics of North America · 2024Review
- Neurodivergent patient experience in a tertiary children's hospital-a qualitative analysis.Frontiers in pediatrics · 2024Article
- Sentiment analysis of post-COVID-19 health information needs of autism spectrum disorder community: insights from social media discussions.Frontiers in psychiatry · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
Background: Autistic adults have high rates of co-occurring health conditions, suicide, and premature mortality, yet often experience health care barriers and poor health outcomes. A better understanding of the health care needs and experiences of autistic adults is essential for improving the health care system and patient experience. Methods: This study examined the perspectives of autistic adults regarding their health care experiences in primary care and other settings and their suggestions for improvement using both qualitative and quantitative methods. Twenty autistic adults (aged 18-35 years, 65% male) completed surveys and individual semi-structured interviews. Results: Qualitative data analysis results revealed 10 subthemes across 3 overarching themes: (1) system- and clinic-level factors affect access to care, (2) aspects of the clinic environment affect health care experiences, and (3) provider knowledge and practices affect health care experiences. Within the first theme, participants described barriers to obtaining services, including scheduling logistics, costs and inadequate insurance coverage, and transportation barriers. The second theme focused on aspects of the clinic environment that participants found especially relevant to their health care experiences and that required specific accommodations. This included sensory input, anxiety-provoking situations and procedures, and wait time. Within the third theme, participants emphasized aspects of providers' care that affected their health care experiences. Key factors included provider knowledge about autism, communication, rapport, and individualized care and patient-provider partnerships. Conclusion: Overall, the findings point to a need for provider training and improvements to the health care delivery system to better meet the unique needs of autistic adults.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.