Evidence map›Paper›PMID 36936380›Full record

ArticleJournal of patient experience2023

Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences.

Melissa J Basile, Lara Dhingra, Stephanie DiFiglia, Jennifer Polo, Russell Portenoy, Janice Wang, Patricia Walker, Brandi Middour-Oxler, Rachel W Linnemann, Catherine Kier and 12 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of patient experience, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Melissa J BasileFeinstein Institutes for Medical Research, Northwell Health, New York, NY, USA.
Lara DhingraMJHS Institute for Innovation in Palliative Care, New York, NY, USA.
Stephanie DiFigliaMJHS Institute for Innovation in Palliative Care, New York, NY, USA.ORCID https://orcid.org/0000-0002-6288-701X
Jennifer PoloFeinstein Institutes for Medical Research, Northwell Health, New York, NY, USA.
Russell PortenoyMJHS Institute for Innovation in Palliative Care, New York, NY, USA.
Janice WangDivision of Pulmonary, Critical Care and Sleep Medicine, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, New Hyde Park, NY, USA.
Patricia WalkerDepartment of Pulmonary Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
Brandi Middour-OxlerDivision of Pulmonary, Asthma, Cystic Fibrosis and Sleep, Department of Pediatrics, Emory University, Atlanta, GA, USA.ORCID https://orcid.org/0000-0001-5343-7386
Rachel W LinnemannDivision of Pulmonary, Asthma, Cystic Fibrosis and Sleep, Department of Pediatrics, Emory University, Atlanta, GA, USA.
Catherine KierDepartment of Pediatrics, Stony Brook University Medical Center, Stony Brook, NY, USA.
Deborah FriedmanDepartment of Psychiatry, Massachusetts General Hospital, Boston, MA, USA.
Maria BerdellaDepartment of Pulmonary Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
Robert AbdullahDepartment of Pediatrics, Stony Brook University Medical Center, Stony Brook, NY, USA.
Lael M YonkerDepartment of Psychiatry, Massachusetts General Hospital, Boston, MA, USA.
Martha MarkovitzKeck Medicine of University of Southern California, Los Angeles, California, USA (retired).
Denis HadjiliadisDivision of Pulmonary and Critical Care Medicine, Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA, USA.
Melissa ShiffmanCommunity Stakeholder, New York, NY, USA.
Francine FischerCommunity Stakeholder, New York, NY, USA.
Sophie PollingerDepartment of Pediatrics, Massachusetts General Hospital, Boston, MA, USA.
Margot HardcastleDepartment of Pediatrics, Massachusetts General Hospital, Boston, MA, USA.
Nivedita ChaudharyDepartment of Pediatrics, Massachusetts General Hospital, Boston, MA, USA.
Anna M GeorgiopoulosDepartment of Psychiatry, Massachusetts General Hospital, Boston, MA, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

To prevent or mitigate chronic illness burden, people with cystic fibrosis (pwCF) and their family caregivers need primary (generalist-level) palliative care from the time of diagnosis forward. We used qualitative methods to explore their preferences about a screening-and-triage model ("

Indexed as

caregiver burdencystic fibrosispatient-centered researchprimary palliative careprogram developmentqualitative researchquality of health care

Identifiers

PMID36936380
PMCPMC10021085

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.