ArticleInternational journal of qualitative studies on health and well-being2023
"I couldn't": A phenomenological exploration of ethical tensions experienced by bereaved family members during the pandemic.
Article in International journal of qualitative studies on health and well-being, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed, 5 citations in OpenAlex.
- Moral Distress Among Family Caregivers: A Concept Analysis.Journal of advanced nursing · 2026Review
- Unravelling the complexities: a scoping review of the collateral effects on bereaved relatives during and beyond the COVID-19 pandemic.BMC palliative care · 2025Article
- Description and Analysis of Research on Death and Dying during the COVID-19 Pandemic, Published in Nursing Journals Indexed in SCOPUS.Nursing reports (Pavia, Italy) · 2024Article
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Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe COVID-19 pandemic entailed significant changes in accompaniment, end-of-life, and bereavement experiences. In some countries, public health measures prevented or restricted family caregivers from visiting their dying loved ones in residences, long-term care institutions, and hospitals. As a result, family members were faced with critical decisions that could easily lead to ethical dilemmas and moral distress.
aimThis study aimed to understand better the experience of ethical dilemmas among family caregivers who lost a loved one. METHDS: We interviewed twenty bereaved family caregivers and analysed their narratives using Interpretative phenomenological analysis.
resultsOur analysis suggests that family caregivers struggled with their multiple responsibilities (collective, relational, and personal) and had to deal with the emotional cost of their choices. Results display three emerging themes describing the experience of ethical struggles: (1) Flight or fight: Struggling with collective responsibility; (2) Being torn apart: Assuming relational responsibility and (3) "Choosing" oneself: The cost of personal responsibility. DISCUSSION/
conclusionResults are discussed and interpreted using an ethical, humanistic, and existential conceptual framework.
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Registered trials
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