Evidence map›Paper›PMID 36918868›Full record

ArticleBMC medical ethics2023

Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals' perceptions and experiences.

Kajsa Norbäck, Anna T Höglund, Tove Godskesen, Sara Frygner-Holm

Open access · goldFull text read
In one paragraph

Article in BMC medical ethics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
5.2field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 9 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

Kajsa NorbäckCentre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Box 564, SE-751 22, Uppsala, Sweden. kajsa.norback@crb.uu.se.
Anna T HöglundCentre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Box 564, SE-751 22, Uppsala, Sweden.
Tove GodskesenCentre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Box 564, SE-751 22, Uppsala, Sweden.
Sara Frygner-HolmCentre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Box 564, SE-751 22, Uppsala, Sweden.
Uppsala University · SEMarie Cederschiöld University · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundResearch is crucial to improve treatment, survival and quality of life for children with cancer. However, recruitment of children for research raises ethical challenges. The aim of this study was to explore and describe ethical values and challenges related to the recruitment of children with cancer for research, from the perspectives and experiences of healthcare professionals in the Swedish context. Another aim was to explore their perceptions of research ethics competence in recruiting children for research.

methodsAn explorative qualitative study using semi-structured interviews with key informants. Seven physicians and ten nurses were interviewed. Interviews were analysed using inductive qualitative content analysis.

resultsThe respondents' ethical challenges and values in recruitment mainly concerned establishing relationships and trust, meeting informational needs, acknowledging vulnerability, and balancing roles and interests. Ensuring ethical competence was raised as important, and interpersonal and communicative skills were highlighted.

conclusionThis study provides empirical insight into recruitment of children with cancer, from the perspectives of healthcare professionals. It also contributes to the understanding of recruitment as a relational process, where aspects of vulnerability, trust and relationship building are important, alongside meeting informational needs. The results provide knowledge on the complexities raised by paediatric research and underpin the importance of building research ethics competence to ensure that the rights and interests of children with cancer are protected in research.

Indexed as

NeoplasmsQuality of LifeAttitude of Health PersonnelChildHealth PersonnelHumansQualitative ResearchSwedenAssentEthical challengesEthicsHealthcare professionalsInformed consentPaediatric oncologyQualitative researchResearch recruitmentShared decision-making

Identifiers

PMID36918868
PMCPMC10012289
OpenAlexW4324157335

What OpenQuestion holds

Textfull text, public
LicenceCC BY
reference markers read7
measurements read3
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.